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Anyone had successful stem cell transplant for AML?
Blood Cancers & Disorders | Last Active: Sep 2, 2022 | Replies (163)Comment receiving replies
I just saw what another person posted as well. It is tough to walk through all of this and grieving is an important thing. It’s okay and an expected part of this. Another element that I’ve processed a bit is PTSD - there are often unexpected thoughts and desires that can come up. I don’t want to give “advice” per second but I can share what’s helped along the way. The integration of all the things we experience and feel is vital. I have found that writing out my story has been very therapeutic as well as staying connected relationally. Often people (people I love) haven’t known what to do so I tell them what I need: will you visit me? Can we FaceTime? That takes a little extra energy but I found that rather than being upset that people weren’t doing certain things - I would let them know. Everyone responded well. People often just don’t know how to help and might stay away for fear of saying the wrong thing.
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Thanks, Ted. My wife has been very private about all this. I had to get her permission to even tell her sister because they were wanting to identify potential donors. Our two kids know, our son was the donor and our daughter also sent in the kit. So, basically, it boils down to me. I wondered about PTSD! My wife had been writing her memoir before all this most recent phase started but she has quit writing. I know that part of it is lack of energy (she still sleeps a lot) and part of it is that she doesn't want to be negative... and there's not much positive in her world right now. Thanks for your response, it helps me to better understand what people experience going through the BMT process.