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@colleenyoung

Hi @tedwueste, I'd like to add my welcome. You'll notice that I moved your message to the Blood Cancers group (https://connect.mayoclinic.org/group/blood-cancers-disorders/) to this discussion about stem cell transplant for AML. I think @bradmm will appreciate hearing your experience. Here you'll also meet @loribmt @lakegirl409 @kjjjrader and others.

Ted, can you talk more about the heart damage and blood clots? How are those being managed?

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Replies to "Hi @tedwueste, I'd like to add my welcome. You'll notice that I moved your message to..."

I experienced some damage to my heart from ABVD chemo for Hodgkins and the the chemo I did for AML caused problems as well. My ejection fraction went down significantly and I ended up in the ICU with heart failure while in-patient for chemo. I am taking a couple of blood pressure meds daily and checking my blood pressure twice each day.

The blood clots were a surprise - my port clotted and they had to remove it soon after admitted for AML chemotherapy. I clotted a couple of other times and was able to manage with a shot twice each day and then eliquis. I went off the eliquis three months after my last line was taken out in nov. Then, a few weeks later - I developed deep clots in my arm. Now, I’m back on blood thinners and likely will be for the rest of my life. I’d never had any clotting issues previously but the docs think I may have a genetic condition that was triggered by all the ports and lines I’ve had over the last three years. Still a bit of mystery.