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CLL complicated by autoimmune hemolytic anemia (AIHA)

Blood Cancers & Disorders | Last Active: May 25, 2023 | Replies (17)
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@whoey

I am being treated for acute hemolytic anemia with Rituxan (I've had 4 infusions) and will most likely be starting Venetoclax and obutasamab soon. I learned that the anemia was caused by the CLL so I'm not sure if it's autoimmune. I'm also being weaned off of mega doses of steroids.

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Replies to "I am being treated for acute hemolytic anemia with Rituxan (I've had 4 infusions) and will..."
sophie601 | @sophie601 | Apr 16, 2023

I am In exactly your position! Rituxan didn’t work. Started obutasamab this last week and will go on Venclexta May 1. Steroids is the worst part of it. 7 months in and only tapered to 10 mg. Hair loss.. vision bad..shaky and muscle miopathy in my legs. Hip problems. Etc I have hope for my CLL but the AIHA is my threat to comfort and happiness.

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