← Return to CLL complicated by autoimmune hemolytic anemia (AIHA)

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@colleenyoung

Hi @gg17, I'd like to bring @wolfbauer @engelee and @hanark0068 into this discussion as they also have experience with autoimmune hemolytic anemia (AIHA) and may be able to share some of their experiences.

Geri, Do you have inherited or acquired AIHA? Was it discovered recently in conjunction with the diagnosis of chronic lymphocytic leukemia (CLL)?

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Replies to "Hi @gg17, I'd like to bring @wolfbauer @engelee and @hanark0068 into this discussion as they also..."

Hi I just sent another post rather than a direct response. This is my first time using this.

My hemolytic anemia was discovered thru my usual comprehensive blood test I got every year at Mayo R.i has been having a lot of fatigue and hemoglobin and hematocrit were quite low. At fist I heard it called Mast Cell disease. Then hemolytic anemia. The effect was to lower my oxygen saturation down to 83 and 84 when normal should be 98-99 percent saturation of O2 in my blood. As I understand it, my rbc’s were being dispatched by bone marrow to try to compensate for low oxygen saturation. The problem was the rbc’s were immature and not carrying enough oxygen. I was put on oxygen for awhile and saw local hematologist. Eventually, after I got my ostomies, my saturation of oxygen is now 98. I had unusual problems prior to the ostomies , very serious and causing all sorts of bizarre and serious complications.