Neuropathy: Anyone have any experience with gabapentin?

Posted by sjhedcon @sjhedcon, Mar 21, 2020

I have loss of feeling in my feet and tingling sensation. My doctor prescribed gabapentin. I read the side effects and decided not to take this med.
Anyone have any experience with gabapentin?

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@fredjan2016

@laurask I'm glad you are not having any problems. The situation I was talking about scared me. The person was taking Clonazepam 3 or 4 times a day as prescribed by the doctor. I hope nobody has the experience they had. My pharmacist told me they are known to interact after I asked him. Hopefully, this was an isolated instance, but it was real and repeatable for this individual. Just thought I should share a real life experience.

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Absolutely understand & truly apologize if I came across in a rude manner!

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@rwinney

Hello @laurask. That is a alot of medicine but, I'm glad you are getting results and tolerating well. How are you feeling these days? Are you experiencing any new symptoms? Do you find relief from certain symptoms? Have you decided to try the neuropathy supplement protocol? I hope your day is pleasant. 🌺
Be well ~
Rachel

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@rwinney I apologize for such a belated message! I’be maintained a positive mindset through this and 1,001% believe that that is a huge factor in recovery. Constantly push myself refusing to allow polyneuropathy dictate my life. I’ve made remarkable strides and really want to help others do the same. If you or anyone reading this have a connection to making a difference, I SO strongly feel the need to be involved. I hope you’re doing wonderfully and staying safe through Miss Corona.

My very best,
Laura

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My doctors are doing phone calls instead of office visits. I prefer it ... I don't want to spend any time in doctors' waiting rooms where other patients have been exhaling, sneezing, and coughing ... not right now. I have enough to worry about with Neuropathy, RLS, hypoglycemia, anemia, arthritis, asthma, and fallen arches.
So far, everyone, everywhere I've been has been helpful and cheerful. Except the DMV of course.
I always thank people for working. I thanked my G.P. (the only one who saw me in person) for being so brave.
Peggy

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my doctor is doing phone calls, buts me to get blood work done. At this time is Quest safe enough for someone at very high risk

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@dckuke

my doctor is doing phone calls, buts me to get blood work done. At this time is Quest safe enough for someone at very high risk

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@dckuke My lab said to call and make an appointment at this time . I dont need any blood work till June just passing this information on to you . YOu may want to call Quest and talk to them .

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@laurask

I received a call from the mayo clinic yesterday and confirmed a video appointment that will take place in two weeks. Based on that, I will be put at the top of the list for Neurology. I actually cried happy tears at after getting off the phone.I pray that mayo has the answers that I’ve been searching for.

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Hi Laura @laurask - that is great news! It is something to be excited about and I'm hoping you are able to find some answers and help. You may want to read through the following new discussion since you have an upcoming video appointment. It might help to put you at ease and give you some tips.

Telemedicine: How to make the most of a virtual doctor visit - https://connect.mayoclinic.org/discussion/covid-19-telemedicine-its-a-brave-new-world/

I hope you can come back and let us know how the video appointment went.

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@laurask

I received a call from the mayo clinic yesterday and confirmed a video appointment that will take place in two weeks. Based on that, I will be put at the top of the list for Neurology. I actually cried happy tears at after getting off the phone.I pray that mayo has the answers that I’ve been searching for.

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@laurask Incredible news! So happy for you Laura.
Rachel

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I received a call from the mayo clinic yesterday and confirmed a video appointment that will take place in two weeks. Based on that, I will be put at the top of the list for Neurology. I actually cried happy tears at after getting off the phone.I pray that mayo has the answers that I’ve been searching for.

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@laurask

I received a call from the mayo clinic yesterday and confirmed a video appointment that will take place in two weeks. Based on that, I will be put at the top of the list for Neurology. I actually cried happy tears at after getting off the phone.I pray that mayo has the answers that I’ve been searching for.

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Fantastic, @laurask. I second @rwinney and @johnbishop's joy at your getting an appointment for a video-consult. You'll notice that I moved your message to this discussion where you've been sharing your journey with other members so they can also hear the news.

Are you making notes and a list of questions to prepare for the appointment?

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@artscaping

@jmhd, Hi Jim, I couldn't help but notice your statement about pain not being essential. Actually, in recognition of how it helps, my understanding is that medical marijuana is considered essential during this event. The dispensaries are suggesting that in-home delivery is safer than curbside. I will tag @jeffrapp, @dckuke in case they need to know.

May you have comfort and ease.
Chris

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@artscaping I'm looking for a good CBD non-THC since it's illegal in Texas, oil and lotion. I can't smoke anything. My lungs say no to smoking. Since they found some nodules when they were x-raying for my broken ribs and internal injuries after an accident in December, I'm fine with that. I grew up with parents that smoked multiple packs/day. My husband smokes 3 packs/day. Growing up in the 60s etc., smoking was common. I'm praying that the nodules aren't growing. I am supposed to have a follow-up x-ray in June.
To address the Gabapentin question posted, I have Peripheral Neuropathy Syndrome in my feet up through my legs; also in my hands; Chronic Pain from lumbar replacement and stenosis, plus cervical stenosis. I'm on Gabapentin 300 my/ 3x/day plus Celebrix. I tried Savella and Cymbalta and had bad reactions to both of those meds. Therefore, my pain Dr and I agreed that Lyrica was not an option for me. I am a very small person and have a low drug tolerance. I've had terrible reactions to many drugs so we have to be vigilant. So far, Gabapentin and Celebrix are not causing anything unusual. I have migraines so memory loss was already an issue from Topamax before I started taking these meds. I'm also on Tramadol (3-4/day) and a muscle relaxant that I only take at bedtime since it knocks me out. Nights can be agony with my neuralgia in my feet and legs. And my arms go numb no matter what because of my cervical stenosis. Lucky to get a solid 3-4 his of sleep.

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