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Just found out I have mycobacterium abscessus!
MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)Comment receiving replies
@dolson0730 Hello. How are things going for you? Did you ever get your Aerobika device? I was given a prescription for one, but have yet to get one. If you did get one, did you find that it helped with bringing stuff up?
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I have not gotten an Aerobika device yet. I am overwhelmed by all this and not sure how I get one, or if I need one. I ask my Int Med Dr, Pulmonologist and ID Dr about airway clearance and they do not recommend that, but say I can do airway clearance if I want. I get so confused when professionals seem wishy washy about treatment. I have M Abbscessus. Anyone else care to share their treatment of M. ascessus? I started out on Linezolid 2x daily, Amicacin IV infusions 2x daily, and Tigecycline IV Infusions 2x daily. After 1 month on Linezolid I lost 14#, couldn't eat, drink & all I could do was sleep between infusions. My ID DR took me off Linezolid after 30 days. I was on Amicacyn IV's for 5 months then lost hearing permanently so was taken off of that. I am now only on Tigecyline IV Infusions 2x daily, and ID Dr says 4+ more months which will make it 1 year. Has anyone else been cured of Abscessus by just 1 antibiotic? Tigecycline? I am so discouraged. Thank you!
Diana