Simply discouraged by chronic pain

Posted by Rachel, Volunteer Mentor @rwinney, Mar 15, 2020

Dear anyone,

I have all the right answers in my head, regarding my chronic pain yet, it's so hard to apply them day in and day out. Exhausting. I'm very stifled in this body which carries through to my life and overall well being. I'm bored and lonely...it's isolating when you have difficulty being a part of normal civilization due to various health conditions. I desperately want to be what I used to be...someone who could physically accomplish the simplest of tasks, partake in normal family functions like a dinner or a small birthday party. Im so frustrated by hurting 24/7and deeply mourn the loss of what I used to be. I work desperately to keep myself focused on what I CAN do verses what I can't but, when I repeatedly get shot down by my diseases amd diagnoses, disappointment is inevitable.

I know I've come to the right place... others here share my struggles. Thank you for letting me fall back on you. Today I'm just at my wits end.

Rachel

Interested in more discussions like this? Go to the Chronic Pain Support Group.

vklittle61 | @vklittle61 | Mar 17, 2020

Is everyone seeing my responses because I feel like they are not because no one replies to them

Rachel, Volunteer Mentor | @rwinney | Mar 17, 2020

In reply to @madhouse30 "The pain at night is unbearable at times,feels like walking on hot glass" + (show)

I'm sorry to hear that.

Rachel, Volunteer Mentor | @rwinney | Mar 17, 2020

In reply to @lorirenee1 "Hi Rachel, You express my sentiments, exactly. You express them so well that I suffer with..." + (show)

@lorirenee1

Hi Rachel, You express my sentiments, exactly. You express them so well that I suffer with you and for you. I know you work so hard at finding answers, and really, there are none. There is kind of "patches," to try and make us feel better, but nothing really works very well for nerves. In this day and age, I find it almost incredulous that there is so little. I cannot help but share with you the two that work for me. They are not particularly happy solutions, but they beat pain by a long run. First, I have found Kratom in pill form, so you do not have to taste the vile stuff. The pills don't work as long for me as the powder, but they do work. Please do not be afraid of Kratom. Like anything else, if used responsibly, there is no problem with it. Kratom can be a God send. That is why there is an American Kratom Foundation, trying to make it legal, and studied more. If you want the place where I get pills, let me know. And you don't get the high of marijuana. And speaking of marijuana, which I know you can't take, if you have your medical marijuana card, I would have a serious talk with a dispensary worker about what to take, if you want to try again. I notice, at least for me, that the marijuana vapes are pretty mild and mellow. They are good for distancing the pain, but still feeling like yourself. I find the flowers, stronger, and the Gummies, which take about an hour to kick in, just blow me away. However, each has it's way of making me feel better. If I am in utter agony, I inhale a few puff of vape, and then take a Gummie, which will kick in later. Again, a very odd way to live, but beats pain. Lastly, I will be having a trial of a Dorsal Root stimulator on April 9th, if the trial is not canceled due to the Corona Virus. Of course, I would rather lower the pain, than take Kratom and Marijuana. Rachel. really, try Kratom. Let go of fears. You are such a responsible, intelligent, person. You would only be helping yourself. Losing yourself in illness is not to be described. For me, it is just a daily heartbreak. I was very active, involved, and fit. Now I try, when I can. I mostly do foot exercises to strengthen my muscles, because without this, I can barely walk. Anyway, I hear you. Each of us are different, but I do HEAR you. At some level, I do know your journey, and I am sorry. Please reach out to me, and continue to be brave. Love, Lori Renee

Jump to this post

Hello @lorirenee1. Believe it or not...I take solice in knowing that you and other Connect friends are out there. During times when I feel no one in my family understands or can truly relate, I turn here and am very grateful for you and many others who offer understanding and encouragement to keep trudging on.

Before I found this forum, I often wrote my thoughts in a journal as my release. It's a great idea but, paper can't respond.

Thank you for being there. I'm truly hoping your trial proves successful. Please keep me posted. Take care.
Rachel

Rachel, Volunteer Mentor | @rwinney | Mar 17, 2020

In reply to @vklittle61 "Thank u Ginger it’s very hard to adapt to! I am also living in chronic pain" + (show)

Hi @vklittle61. Right there with you.
Rachel

Ginger, Volunteer Mentor | @gingerw | Mar 17, 2020

In reply to @vklittle61 "Is everyone seeing my responses because I feel like they are not because no one replies..." + (show)

@vklittle61 I am not sure what you are posting about? This seems to be your first post in this thread.
Ginger

lorirenee1 | @lorirenee1 | Mar 17, 2020

In reply to @rwinney "Hello @lorirenee1. Believe it or not...I take solice in knowing that you and other Connect friends..." + (show)

@rwinney Rachel, I totally find comfort here. No doubt about it. We get it. We really do. Thanks for your words about my trial. I cannot wait. I kept putting it off, but I just can't anymore. Have to be strong, and do it!!!! Thanks so much, and believe me, I do sense what you are going through.....Lori

tjprather | @tjprather | Mar 18, 2020

I put on some music and dance and sang. My parents love big band music. It was wonderful to see them dance. My dad learned how to tap dance from he's nanny who he love very much. Of course a beer always helped..This virus will pass. I go out and walk around our parking lot and wonder what going on in each apartment. So many unhappy people and I always say Hi and smile if that helps them. Never let some judge you that is up to God. Be yourself, know who you are and always express yourself. Life is to short, but mental health will always be around. Don't let it control you. You are in control always remember that. So live, love, be happy. Being sad is OK, but remember your in control.. Stay safe and follow the rules. It will always pass. Tom.

tjprather | @tjprather | Mar 18, 2020

Your never alone. I feel your pain and understand where you are coming from. Your a pretty women and is OK to be alone for now. One thing I have learned how to be alone, but your not God will embrace you. Your important to Him. Tom.

betsykunkel | @betsykunkel | Mar 18, 2020

You wrote that beautifully. I face the same thoughts and pain as you do. I wish I had the answers. Please know that you will be in my prayers. There are a bunch of us experiencing pain day and night. Sometimes I feel the whole thing is such a waste. Hang in there! Private message me anytime. As they say -misery loves company. It helps me to talk with others who feel the same way.

Rachel, Volunteer Mentor | @rwinney | Mar 18, 2020

In reply to @tjprather "Your never alone. I feel your pain and understand where you are coming from. Your a..." + (show)

Hello Tom @tjprather. I'm not positive who your message(s) are intended for. If you can type the persons name using their "Connect handle", it will be sure to get directly to them and allow for a proper response to you. Thank you for contributing with such care and concern.
Rachel