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COVID-19 and Transplant Patients
Transplants | Last Active: Mar 6, 2021 | Replies (459)Comment receiving replies
I was diagnosed with HCC in 2015. I was told to go home and was not likely to get a transplant. I called UNOS and was advised to go to Phoenix Mayo Clinic. They were so professional and said I would be listed on 6-22-18. I am from Sparks Nevada so I rented a Condo in Scottsdale. The day I was listed I received the call from Mayo to come to the hospital for the transplant. Wow! Post transplant they discovered I had Cholangiocarcinoma as well! OMG! Thank God it was discovered by pathology post transplant or I would not have received this special gift of life. I have already beat the odds by living 6yrs. Post diagnosis. I am coming up on my 2 yr. transplant anniversary 6-23-20. I am so blessed and grateful! I won’t let this COVID-19 take me out! I see familiar posts by some of my team! Thank you all so much! I am taking care to avoid any exposure!
Replies to "I was diagnosed with HCC in 2015. I was told to go home and was not..."
@jdlogan65, Welcome to Connect and Thank you for sharing your miracle here. You are to be commended for your proactive approach that brought you this far.
Have you seen the Transplant Discussion Group? Here is the link, is you go to it, you can scroll the list of discussion topics. I invite you (and all who see this) to join a discussion, and meet others who are sharing and asking questions about all things related to transplant.
https://connect.mayoclinic.org/group/transplants/
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Hi, @jdlogan65 Welcome to Connect.
That's unbelievable that you were told you would probably not get a transplant. I presume that was by a local doctor. More and more I am convinced that if you have a medical condition beyond something very ordinary you should go to a large medical center, preferably a teaching one. They see so much more so they know much more. I was diagnosed up here in NH after a very lengthy amount of time but then was treated in Boston at Mass General. I know now that if I am not diagnosed quickly I will head to Boston.
How fortunate you were to get a transplant so soon too. I presume your MELD was already high when you were listed. Your attitude about COVID-19 is perfect. I tell my son that I am invincible because he's such a worrier!
Stay healthy and be careful.
@rosemarya We have taken to walking on our street every day that the weather makes it possible. We have always had many walkers but now it is more than ever. We all are careful of maintaining a distance from each other too.
JK