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COVID-19 and Transplant Patients

Transplants | Last Active: Mar 6, 2021 | Replies (459)

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@naturegirl5

@lisamb Thank you for your post. Did you receive your care and your transplant at Mayo Clinic? It appears that you were transplanted in 2019-is that correct? How are you feeling? Are you self-isolating and what to do you do care for yourself? Anything you'd like to share about your journey would be most appreciated as I try to support our close friend with cholangiocarcinoma who is on the transplant list at Mayo-Rochester. Blessings to you.

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Replies to "@lisamb Thank you for your post. Did you receive your care and your transplant at Mayo..."

Yes I had the team at Mayo Rochester. Transplant was 6-22-18, I have been working part time as an office manager at a farm supply business, but of late I have been home in fear of the virus. I have written short detail of my last 3 years that I would share. I have had two rejections early post transplant but since have been doing fine with limitations. My meld started out at 19 and ended up 33. I had 12 ERCP procedures that placed a stent in the bile duct to ease flow prior to transplant. MY physical strength has lessened as I try to be as active as I once was but have accepted the common sense approach to do what I can. I am blessed. It is a struggle but faith, family and a great medical team has given me new life after a long run of dark days. Thank you for asking.

I was diagnosed with HCC in 2015. I was told to go home and was not likely to get a transplant. I called UNOS and was advised to go to Phoenix Mayo Clinic. They were so professional and said I would be listed on 6-22-18. I am from Sparks Nevada so I rented a Condo in Scottsdale. The day I was listed I received the call from Mayo to come to the hospital for the transplant. Wow! Post transplant they discovered I had Cholangiocarcinoma as well! OMG! Thank God it was discovered by pathology post transplant or I would not have received this special gift of life. I have already beat the odds by living 6yrs. Post diagnosis. I am coming up on my 2 yr. transplant anniversary 6-23-20. I am so blessed and grateful! I won’t let this COVID-19 take me out! I see familiar posts by some of my team! Thank you all so much! I am taking care to avoid any exposure!