← Return to Unspecified Myopathy
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Autoimmune Diseases | Last Active: Mar 15, 2020 | Replies (2)
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Replies to "@jlw -- I was reading through several of your posts and noticed that you have been..."
Thanks for your reply. I had checked out that discussion, but since my test was negative for that, I looked for things more specific to me. I follow up with my primary doctor on the 25th. We, sadly, have not heard a word from my Mayo specialist but, trust me, I have no problem being the squeaky wheel and I will make sure I am heard. I know the Mycophenolate doesn’t work overnight, so I am trying to be patient in that regard and give it some time. I just didn’t expect symptoms to worsen like they are. As for the steroids, the side effects get so harsh for me, that’s why my primary and I are trying to decrease those. They are just so harsh even though they help. It’s like a double edged sword. Thanks again!