← Return to Heart Disease: Let’s Talk About the Emotional Side

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@gwenm

The emotional side of HCM has been difficult at times. When I was a young woman, I was told not to have children and this was devastating to me and left me unable to understand the ramifications for marriage, etc. The man I was dating at the time I never saw again, he said, "I can't marry an invalid." That was 40 years ago. But the memory haunts me not because it interferes with my life now, but it was cruel and harsh when I was young and had no idea how long I would live. Knowing I will never go to the doctor and have a complete good bill of health is overwhelming at times. The erratic complications -- palpitations, fatigue, atrial fibrillation, shortness of breath -- crop up when you dread being held back for any reason. People react can be cautious and scared to be around you. So it takes telling yourself a story of strength and courage and being your own best friend. Finding ways to combat the loneliness and isolation that comes with the disease.

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Replies to "The emotional side of HCM has been difficult at times. When I was a young woman,..."

Hi Gwen, I think that young man you were dating was not worth your time. Even without your health issue, he wouldn't have been a good husband. He sounds narcissistic. So don't let that memory haunt you. I think you "dodged a bullet" when he left although it must have been heart breaking when it happened.

I am guessing you are in your 60's now and probably your life is slowing down anyway. I don't know why any of your casual acquaintances need know of your heart issue. If an activity is suggested that you don't think is wise for you, just say "I don't think I am up for that". You don't need to provide any more information than that. I freely explain "I have heart disease" but I don't give details except to my close friends.

I wish you good luck, a quiet and enjoyable life and someone who loves you despite your heart issue. Really, that young man was an idiot and you were better off without him.

Donna