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@tallyteresa

Gosh! I've been monitored for 8 years for my MGUS. Sorry to hear about your progression to SMM. We all know this may be in our future, but can't be easy to hear that diagnosis. Would love to hear more about your care at Mayo and whether you participate in the P -Crowd study at Dana Farber. Hopefully their research will provide a future for us that is free from MM.

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Replies to "Gosh! I've been monitored for 8 years for my MGUS. Sorry to hear about your progression..."

@tallyteresa My oncologist is Mayo Clinic trained, and practiced there for several years before moving out here to Oregon. I drive 115 miles each way to see him and his practice is highly regarded. I am not part of any clinical trial or group study at this time. I also have chronic kidney disease stage 3B due to an extremely rare condition, plus fibromyalgia and systemic lupus, so hearing the diagnosis was not the first time my breath was taken away medically. I have made serious inroads on maintaining my stress levels to be as low as possible. I find that that helps a lot, along with good diet, reasonable exercise and keeping a positive attitude.
Ginger