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Lung Transplant Post-op? would like to hear positive stories
Transplants | Last Active: Sep 7, 2022 | Replies (48)Comment receiving replies
I’ll reply in brief for now. We were seen at Emory and finished the major portion of the test on June 21. They were to meet June 22 and give us the results (being on their list or waiting). We haven’t heard anything. We would feel more comfortable with a second opinion and my husband spent several days working on the forms that were emailed to him. They require a return fax. He signed his release form. He really hopes to transplant at Jacksonville campus. Emory feels he is a tad early to transplant. They want him stronger and 15 lbs lighter. It was a sobering visit. With Covid they expect him to recover alone in the hospital and this is not okay with me! We are hoping for better news and hope at Mayo. They do not feel my husband will survive Covid directly and won’t live long enough without a transplant to wait for it to “go away” or get vaccines. So we move forward on this next step. Lots to think about each day. Thanks for reaching out. @rosemarya
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@abmac
Is getting a second opinion at Mayo in Jacksonville an option? Mayo will want some of their own tests but would also likely accept a lot of the Emory tests. I found that the sicker I got before kidney transplant the less options I seemed to have. Illness can really paint you in a corner. Sheading 15lbs before transplant sound daunting!!! Fluid retention, toxins, low energy, uremic fog all make it tough to lose weight. I met an awesome guy, Scott who was turned away from getting a liver transplant at a well known center because of his weight, literally told to go home and die but Mayo Clinic in Rochester pioneered a surgery customized to him and saved his life. Mayo seems to find options for people that seem impossible at other institutions. Here is a link to Scott's story https://www.youtube.com/watch?v=j8bn8JBE2TA Don't get my wrong Emory is a great institution and it sounds like you've been making every right move, but other options may be out there somewhere. Best wishes to you and your family as you navigate this narrow road.