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Epidural Lipomatosis

Brain & Nervous System | Last Active: Aug 24 12:23pm | Replies (5)

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@johnbishop

Hello @rockforddom, I would like to add my welcome along with @hopeful33250 and other members. I have taken prednisone for two occurrences of poymyalgia rheumatica (PMR) and can relate to the weight gain problems associated with prednisone. I have no experience with Epidural Lipomatosis but I'm wondering if the weight gain maybe responsible. I did find some information that may be helpful.

Epidural lipomatosis: A dilemma in interventional pain management for the use of epidural Steroids
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3788255/

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Replies to "Hello @rockforddom, I would like to add my welcome along with @hopeful33250 and other members. I..."

Hi, I am newly diagnosis (via MRI, finally) of this epidural lipomatosis in my lumbar spine. I'm gonna insist on MRI's of my C spine, and hopefully they do my T spine also.
I also have (in remission since 2016) PMR and gained 90 lbs during my Prednisone treatment of that. No one even told me weight gain was a normal risk with Prednisone, it was my first time on it.

Anyway, on that study you've referenced for epidural lipomatosis, I was just reading it earlier today, already. It does say in there that obesity was found to be the cause of epidural fat, aka lipomatosis, in 25% of cases. So, that's not just some weight gain, obesity is a set amount over over-weight. There's a grey area of 17% with no known causation. Still, that leaves excess weight as not the major cause. Though in my case, I do think the 90 lbs extra did cause it. I got my referral in to Neurosurgeons, yesterday. Reading the rest of my MRI it appears I've been highly lucky to not have paralysis anywhere yet. So, keeping good thoughts about it, and I have lost 30 lbs of the 90 so far, better than a kick in the pants as Grandma would have said.