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Renal Tubular Acidosis – Type 2 or Proximal

Posted by bumble81 @bumble81, Feb 23, 2020

This has been quite the journey. I intially jouned the forum thinking I had MS. They never did figure out what caused my brain lesions. But I kept getting sicker and finally ended up with a doctor that was willi g to go back over all of my blood work and order more tests.

He has concluded I have Proximal Renal Tubular Acidosis. That is why I can't maintain normal potassium levels. It was also causing heart palpitations, weird blood pressure problems. It looked a lot like panic attacks. So guess what I was told I had for the last almost 2 years? Panic attacks:(

Things got so bad I did end up developing anxiety and depression. But it was a side affect of being completely mistreated by doctors.

Im now 40meq potassium daily. We are working with a nephrologist and he is also monitoring my weekly blood tests until he can see me in April.

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 23, 2020

Wow, @bumble81. That is quite the journey. It must be somewhat of a relief to finally get an answer hopefully. How long have you been taking daily potassium? How are you feeling?

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bumble81 | @bumble81 | Feb 23, 2020
In reply to @colleenyoung "Wow, @bumble81. That is quite the journey. It must be somewhat of a relief to finally..." + (show)
@colleenyoung

Wow, @bumble81. That is quite the journey. It must be somewhat of a relief to finally get an answer hopefully. How long have you been taking daily potassium? How are you feeling?

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I started taking them about a month ago. It's taking time to get back to my old self. I have loat a lot of my physical conditioning but I can now get up the stairs without feeling like i will pass out. My goal is to be able to mow my own lawn this summer. Fingers crossed. I may never be 100%. I joined a facebook group and a lot of people say physical activity is very limited.

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