Need advice: Stage 2 pancreatic cancer

Posted by drewgrebe @drewgrebe, Feb 20, 2020

I would like to talk to someone who hs has or who has a loved one that has had stage 2 a pancreatic cancer. What kind of treatment did they get and did it help. No tumors anywhere else. Took out part of pancreas. Looking to see good or bad just what prognosis was given.

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@lml

Adenocarcinoma is an aggressive cancer for sure. What most people don’t know is what I learned as a Mayo pancreatic surgery patient. Cysts are being found earlier because we have more scans for other purposes. When a cyst is found it can be monitored and if it grows and is pre-cancerous, removed. Additionally the treatment protocols have advanced and patients are living longer and in some cases even cancer free after surgery. Dr. Truty at Mayo shares great info about this in the online videos posted by Mayo. I share my story with people I am close to but not many others, because of the immediate assumptions. Don’t want my employer to assume I am dying soon!

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@lml Dr Truty was my husband’s surgeon. We hope to be able to update him year by year that he saved my husband’s life.

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All good information. You guys made me Feel better at least that there is hope. Did any of you go for a second opinion. I fully trust the doctor he goes to. He trained at mayo and encouraged us to get a second opinion if we wanted. Sounds like he is doing the same treatment they do there. I did read about a new treatment but his doctor said that is for advanced. Save it if he needs in the future. Again thank you all.

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@drewgrebe

All good information. You guys made me Feel better at least that there is hope. Did any of you go for a second opinion. I fully trust the doctor he goes to. He trained at mayo and encouraged us to get a second opinion if we wanted. Sounds like he is doing the same treatment they do there. I did read about a new treatment but his doctor said that is for advanced. Save it if he needs in the future. Again thank you all.

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@drewgrebe just an FYI that the Folfirinox chemo my husband is receiving at our local hospital is the treatment recommended by the Mayo oncologist he originally saw after Whipple

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@lml

Adenocarcinoma is an aggressive cancer for sure. What most people don’t know is what I learned as a Mayo pancreatic surgery patient. Cysts are being found earlier because we have more scans for other purposes. When a cyst is found it can be monitored and if it grows and is pre-cancerous, removed. Additionally the treatment protocols have advanced and patients are living longer and in some cases even cancer free after surgery. Dr. Truty at Mayo shares great info about this in the online videos posted by Mayo. I share my story with people I am close to but not many others, because of the immediate assumptions. Don’t want my employer to assume I am dying soon!

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@lml
Where did you find the videos?

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The videos came via Facebook where I follow Mayo Clinic.

Can’t get the links to copy over on my phone but there are also excellent articles about Dr. Truty’s work at these sites named below. Search his name there and please let me know if you find them.

Newsnetwork.mayoclinic.org.

Advancingthescience.mayo.edu

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@lml

The videos came via Facebook where I follow Mayo Clinic.

Can’t get the links to copy over on my phone but there are also excellent articles about Dr. Truty’s work at these sites named below. Search his name there and please let me know if you find them.

Newsnetwork.mayoclinic.org.

Advancingthescience.mayo.edu

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Here are some videos of Dr. Truty and Dr. Vege, and treating pancreatic cancer at Mayo Clinic

Mayo Clinic Minute [1 minute]


Pancreatic Cancer: Mayo Clinic Radio with Dr Truty [17 minutes]

Pancreatic cancer treatment: Mayo Clinic Radio with Dr. Vege [8 minutes]

@drewgrebe, what are the next steps for your husband?

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@colleenyoung

Here are some videos of Dr. Truty and Dr. Vege, and treating pancreatic cancer at Mayo Clinic

Mayo Clinic Minute [1 minute]


Pancreatic Cancer: Mayo Clinic Radio with Dr Truty [17 minutes]

Pancreatic cancer treatment: Mayo Clinic Radio with Dr. Vege [8 minutes]

@drewgrebe, what are the next steps for your husband?

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He is undergoing chemo 12 treatments in all. He has them every 2 weeks. I just would like for somebody to say something positive cause it always seems negative. They are going to follow it with the lab test cause there is no tumor to look at. Does anyone no if that is the right treatment. Is there any way else they could follow it?

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@drewgrebe

All good information. You guys made me Feel better at least that there is hope. Did any of you go for a second opinion. I fully trust the doctor he goes to. He trained at mayo and encouraged us to get a second opinion if we wanted. Sounds like he is doing the same treatment they do there. I did read about a new treatment but his doctor said that is for advanced. Save it if he needs in the future. Again thank you all.

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@drewgrebe Hello, I had late 1st, early 2nd stage. I went through chemo, radiation and then, surgery. Pancreas, glands, and duodenum removed. I am cancer free. My surgery was 10/23/18. Here is my story. If nothing else it will be encouraging and it goes into more detail about my treatments, etc... https://sharing.mayoclinic.org/2020/02/05/aggressive-approach-to-pancreatic-cancer-yields-outstanding-outcome/

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@drewgrebe, I was diagnosed with stage 2B pancreatic cancer in December 2018. It was discovered after I "flunked" my mammogram and found that my triple negative breast cancer had returned (after 9 years). During the subsequent PET scan to determine the BC stage, the pancreatic cancer was spotted by chance. It's strange to say, but I was actually lucky to get BC again, because if I'd had a normal mammo, the pancreatic cancer would not have been found at a reasonably early stage. I had a mastectomy followed by a modified Whipple procedure, six months of chemo, and then five weeks of radiation last year. It was brutal. I'm almost five months out from my last treatment and I feel pretty good. My scans have been clear. The only issue is that my white blood cell count has yet to fully recover from the beating my bone marrow took from the chemo.

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@drewgrebe

He is undergoing chemo 12 treatments in all. He has them every 2 weeks. I just would like for somebody to say something positive cause it always seems negative. They are going to follow it with the lab test cause there is no tumor to look at. Does anyone no if that is the right treatment. Is there any way else they could follow it?

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@drewgrebe I wanted to check in with you. How are you doing? How is your financée handling the chemo treatments so far? Are you able to accompany him?

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