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@ess77

@jude07 Yes, it seems we do live on a roller-coaster.
Since getting to Mayo, the consistent care with answers, diagnoses and treatment, my health and life have evened out a bit.....I still have surprises like the silly infected toe and possible bone complication and the shock of an increase in brain white matter revealed on the EEG I had last week - that's a shock. White matter issues are concerning, and who knows where that will lead or the time-frame. This is one reason it's important for Rob and me to get both our lives in order - at age 74, with my health and now this issue, we must get his future resolved best we can. He will be alone, no other family, and we have to get a plan for him.

And, Jude, he lives on a huge, scary roller coaster, at times out of control. I'm hopeful we may be on a road to getting some permanent solutions for him. He can't continue in the pain he's experienced for so long. Can't.

My extreme work-out with the oak leaves/squigglies/etc was quite extreme for me. Haven't done anything like that in years, and had to laugh as I used that blower! Thought even if I dropped in my tracks that moment, I'd have a smile on my face. I do love that gardening, getting hands in dirt, organizing my plants.

Btw: I'm a bit sore and tired today, used MMJ pain lotion last night and slept well, but today know I quite overdid it. So, this is a rest day. Tomorrow is too, but must take Rob to the beach for first counseling visit. This is a good thing. He will finally begin improving, I'll take an easy stroll on the beach if my toe survives, or sit and enjoy the peace.

How about that, I'll get a walk in tomorrow, on the lovely beach with waves and wind and good things all.
P.S. Sue, having fun with friends? more line dancing?
P.S.S. Lioness, so sorry you've had more difficult days....I think a one bedroom sounds wonderful! And, you can have lovely plant friends as much as you can care for...simplified life is a good thing!
P.S.S. Hope fiesty76 is better and her back is better...worried about her!
Blessings. elizabeth

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Replies to "@jude07 Yes, it seems we do live on a roller-coaster. Since getting to Mayo, the consistent..."

essay Beach sounds lovely Want to get down there soon I hear it calling me

Good that you both have Mayo to provide some answers. It seems there are multiple concerns, take one at a time and, like you said, tomorrow is not promised so prepare. Life brings challenges and we need to find that one glimmer of a bright spot to carry on.
Sing even if you are sad, and laughs. Give your spirit and soul a little jolt of happiness.

@ess77, Yes, if nothing more, our health conditions and those of loved ones can make us much more appreciative and grateful for those sunshine moments that bring delight. Whether playing in the yard or a walk on a lovely beach, each brief respite that brings a smile and feeling of renewal is truly a gift.

Best to both you and your son going forward!