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Pseudoexfoliation syndrome: Any experiences with treating it?
Eye Conditions | Last Active: Aug 13 3:01pm | Replies (14)Comment receiving replies
Hello @spinedisaster and welcome to Mayo Connect.
As I was not familiar with this disorder I did a little internet search on Google Scholar and found this article,
https://jamanetwork.com/journals/jamaophthalmology/article-abstract/639981
Here is another article, https://www.aao.org/eyenet/article/diagnosis-management-of-pseudoexfoliation-glaucoma
@spinedisaster While we are waiting for others in the Connect community to respond, could you share with us a little of your experience with this diagnosis and what type of treatment has been suggested? Is this a disorder for which you have recently been diagnosed?
Replies to "Hello @spinedisaster and welcome to Mayo Connect. As I was not familiar with this disorder I..."
I actually found out that I had this condition about 10 years ago when I went for an eye exam. The optometrist mentioned that I had this, but really didn't tell me what it was, only that it could mean that cataracts and glaucoma could be more difficult to treat. I really didn't think anymore about it.
This past May, I experienced a migraine and it hurt around my eyes. I went to the Urgent Care center near the house thinking that I had a sinus infection and trouble with an ear. He prescribed Bactrim and oral prednisone. Two weeks later it hadn't gone away and I went back to the doctor and was prescribed more pred. When I started seeing halos around the lights, the doctor said I should see the opthalmalogist right away. My pressure was at 60 and I was told that I had pseduexdoliation glaucoma, narrow angle closure and cataracts. The opthalmalogist tried to do an iridotomy, but it failed because my IOP was too high yet. After many drops of pred, and dozolamide, he referred me to a glaucoma specialist. I spent quite a while with her and she put more drops in my eyes and told me to come back the next day thinking that she was going to have to do surgery. She put me on dorzolomide, timolol, brimodidine, latanaprost, pred and diamox. The next day, my IOP had come down far enough that she decided to do an iridotomy instead, but I had to wait a couple of days for the inflammation to subside some. She put me on dorzolamide, timolo and brimodidine in my left eye and timolol and dorzolamide in the right. Since then, I have had an iridotomy in my right eye also. I have also had a cataract taken out in my left eye, but had complications with it (the zonals broke and the lens capsule fell back, leaving pieces in the anterior of my eye and the posterior). I had a vitrectomy done and now I am waiting for a lens to be sutured in. This was 3 months ago. I am still on drops. timolol and brimodidine and have been having a problem with getting the IOP's to stabilize in that eye.
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references that will come up in a Google search:
Genetics and Genomics of Pseudoexfoliation Syndrome/Glaucoma
Ophthalmologists explore causes, consequences of pseudoexfoliation syndrome
Ocular Surgery News U.S. Edition, June 25, 2016