@gingerw ...also, I was wondering if you had a bone marrow biopsy...only if you don't mind sharing??

@dazlin For now, we are just doing lab work every 3 months. Because I have kidney disease and the function is about 33% the doctor does not want to start any chemotherapy protocol at this point. The reason for this is that if you start the protocol too early eventually it becomes non effective when you really need it to work on the multiple myeloma. I'm okay with that waiting and watching. If your doctor wants lab work every 4 months then insist on every four months, don't let somebody try to talk you into six months. That's what happened to me. My oncologist said "everything was stable so let's try for 6 months". When I went back she was so disappointed because that was when everything had taken a turn for the worse. And I knew something was wrong, but she said "no we'll just wait for the next labs".

I hear you about fatigue, but I push myself. I attribute the fatigue to my age (almost 75) and that I could stand to lose about 25 lbs. But whatever I do to rationalize it; the fatigue is there. I find that I'm usually in bed by 8:30-9:00 but I'm up at 5:30 every morning without an alarm set. I've always been very active and try to continue to do that, but there are days when I have to rest because the bottom drops out after an hour or so of activity.