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Always run down with MGUS

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (59)

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@gingerw

@JustinMcClanahan Thank you for tagging me in to this conversation, Justin.
I was diagnosed with MGUS in Nov 2017, and have had issues with fatigue since 2015 or so. Like you, @dazlin there are days when I feel full of energy. Up and at 'em early, accomplish things on my list, then collapse in early afternoon, unable to even think about fixing an evening meal. It is always in the back of my mind when planning something, if the energy will be there when I ask for it. Sometimes I push on through it, knowing I will be pretty tired the next day, sometimes not getting good rest at night. I try to plan "down time" to recharge my batteries, even during the day. There are a couple of things that I would suggest. First, a complete set of bloodwork done, to make sure there are no other things going on. Have a open and honest talk with your oncologist about your fatigue. [I have a comorbitidty of kidney disease] Take stock of your diet and lifestyle. Eat as healthily as you can, eliminate those foods which may be harmful to you. Take a multi-vitamin and/or supplements as you and your dr see fit. Finally, honor yourself, and do not beat yourself up for having to slow down.
Ginger

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Replies to "@JustinMcClanahan Thank you for tagging me in to this conversation, Justin. I was diagnosed with MGUS..."

Ginger, thank you for your reply. I have just been diagnosed with MGUS in November this year. I have unbelievable fatigue. I am a very active 75 year old Nonnie that is busy every single day with house and yard and grandchildren and church and dance club and book club and supper club it goes on and on. I stay very busy. I just don’t even know how to adjust myself down to this pace. I’m so fatigued all the time I get up feeling OK and then do as much as I can but in two hours, I’m ready to take a rest. That’s not me. I don’t like it. This is really early for me and not much going on. They made this diagnosis and said come in six months to repeat Scan annd blood work. and if your spleen has enlarged more ( that was the only thing they found) They would do a bone marrow biopsy. This leaves me in the dark and concerned and probably worrying about things. I don’t need to be worrying about. I do eat a healthy diet. I have a good BMI and I walk every day a couple of miles and enjoy being outdoors. this is just a slap in the face for a woman who hasn’t even taken a prescription yet.!