Confused: test didn't detect neuropathy, but many symptoms

Thanks so much. I did get a medical marijuana card and that's part of the problem now as no doctor will treat me because the are afraid to loose their lience. I thought I was doing myself good and was encouraged by family and friends to do so. It helps tremendously. So the last pain doc say give up your card and I'll treat you. After I call the state and gave up my expensive card he comes back and tells me he will no longer give my the meds I need. I'm so lost.
Thank you for your ideas though it is encouraging that what I was doing wasn't wrong.
Much love
Tom

Mine drug test I have no choice unfortunately

Hi Jim
Great insight. My feet and hands r numb. Yet they burn like well standing barefoot on ice. When on opioids my hands or fair but are bad without. I fall mostly on the steps and in the shower. I assume its from looking up to down or vise versa as that is a test I had to do during my medical to get and keep my pilot's license. I loose my balance even standing still thu. I've broken ribs and toes falling. I've held onto the railing so hard it has flung me into the wall face first. I feel for your wife as I didn't get out of my adjustable bed for years and wouldn't have until my wife kicked me out. Get this I was diagnosed with a disease called polycythemia vera and put on a pill called hydroxyurea a chemo pill after I had a DVT blood clot. After 2 years this hit me like a brick the neuropathy I mean. Turns out I never needed it as I had secondary polycythemia and it resolved it self after I stopped working. Where I work had mold that caused severe copd so when I left a few year later the incurable polycythemia was gone. My hematologist diagnosed me when I went to see him and described my conditions. Burning numbness and pain in my legs. Trouble with balance and what I told him is all the sudden I became stupid. I couldn't concentrate. My pcp treated my for years then moved on to a hospital and sent me to a pain doc. After about 7 minutes over 3 appointments and a nerve test he told me I wasn't sick. Cut my opioids in half to take me off of them. I was in sever pain but thought it was from being inactive for years. Now that I've been on my own and up and around for months I realize it wasn't from being inactive it's what I was feeling before but worse. The new pain doc tells me the same bs so I started to cut my dose before he stopped them. Now I can barely walk. The burning has moved to my chest as well. I am lost and can't believe this is happening. Now that I've seen 2 pain doctors I worry no one will treat me.
I really appreciate your story and thoughts
Thank you.

Hi Jim
Great insight. My feet and hands r numb. Yet they burn like well standing barefoot on ice. When on opioids my hands or fair but are bad without. I fall mostly on the steps and in the shower. I assume its from looking up to down or vise versa as that is a test I had to do during my medical to get and keep my pilot's license. I loose my balance even standing still thu. I've broken ribs and toes falling. I've held onto the railing so hard it has flung me into the wall face first. I feel for your wife as I didn't get out of my adjustable bed for years and wouldn't have until my wife kicked me out. Get this I was diagnosed with a disease called polycythemia vera and put on a pill called hydroxyurea a chemo pill after I had a DVT blood clot. After 2 years this hit me like a brick the neuropathy I mean. Turns out I never needed it as I had secondary polycythemia and it resolved it self after I stopped working. Where I work had mold that caused severe copd so when I left a few year later the incurable polycythemia was gone. My hematologist diagnosed me when I went to see him and described my conditions. Burning numbness and pain in my legs. Trouble with balance and what I told him is all the sudden I became stupid. I couldn't concentrate. My pcp treated my for years then moved on to a hospital and sent me to a pain doc. After about 7 minutes over 3 appointments and a nerve test he told me I wasn't sick. Cut my opioids in half to take me off of them. I was in sever pain but thought it was from being inactive for years. Now that I've been on my own and up and around for months I realize it wasn't from being inactive it's what I was feeling before but worse. The new pain doc tells me the same bs so I started to cut my dose before he stopped them. Now I can barely walk. The burning has moved to my chest as well. I am lost and can't believe this is happening. Now that I've seen 2 pain doctors I worry no one will treat me.
I really appreciate your story and thoughts
Thank you.

They never detected it on my urine test.

Thanks so much. I did get a medical marijuana card and that's part of the problem now as no doctor will treat me because the are afraid to loose their lience. I thought I was doing myself good and was encouraged by family and friends to do so. It helps tremendously. So the last pain doc say give up your card and I'll treat you. After I call the state and gave up my expensive card he comes back and tells me he will no longer give my the meds I need. I'm so lost.
Thank you for your ideas though it is encouraging that what I was doing wasn't wrong.
Much love
Tom

Jim I meant to ask how is your implant working. This is what the the current doctor wants to do to me. Some sort of magnetic field or something like that.
Thanks
Tom

@da20pilot The stimulator worked well for the first year. Since then I have to get it calibrated every 3 months. I know it's still helping, but I also take morphine, imipramine, Meloxicam and acetaminophen for the pain. Most of the time I can manage the pain, but when I'm on my feet any length of time the pain goes up from its baseline of 2 to 6+. I'm having conversation with a stimulator specialist about changing to a dorsal root ganglion stimulator. I'm scheduled to get an adjustment on my scs on Monday, and 3 weeks later, after I can tell if the adjustment helped, I have an appointment with the specialist to see if there's anything else I can try before I get the drg implant.