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nancykay1888 (@nancykay1888)

Antisynthetase Syndrome: Anyone else?

Autoimmune Diseases | Last Active: Dec 12, 2021 | Replies (31)

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@johnbishop

Hello @jamieray6812, I know it must really be difficult trying to find answers when you have such a rare disorder like antisynthetase syndrome. Along with the reference link above for the condition on the National Organization for Rare Disorders website, The Myositis Association website has information that you might find helpful.

– Antisynthetase Syndrome: https://www.myositis.org/about-myositis/complications/antisynthetase-syndrome/

If I understood your post, your doctors mentioned going to Mayo Clinic after you were diagnosed with antisynthetase syndrome. Have you setup an appointment with Mayo?

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Replies to "Hello @jamieray6812, I know it must really be difficult trying to find answers when you have..."

Thank you! I set up a phone appointment today with Mayo Clinic

Thank you, I have not set up a appointment… I did call and try but they told me they didn’t take my insurance

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