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nancykay1888 (@nancykay1888)

Antisynthetase Syndrome: Anyone else?

Autoimmune Diseases | Last Active: Jul 18 1:56pm | Replies (63)

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Hello @nancykay1888, I would also like to welcome you to Connect. I am sorry to hear about your husband's rare disorder. I read the link that @johnbishop provided in his post to you. This must have been very difficult for his doctors to diagnose.

If you are comfortable sharing more, what type of symptoms was your husband experiencing when he was in the hospital? I'm also wondering what type of specialist made this diagnosis.

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Replies to "Hello @nancykay1888, I would also like to welcome you to Connect. I am sorry to hear..."

First off, I apologize for not receiving these emails earlier. I would love to share everything that I remember and how it started (problem started before we were aware). It is heretitary but with Don we have no idea where it came from. His father's background is not known. The specialist who made the diagnoses were both pneumonary doctors from India. One of the doctors had experienced or knew about the syndrome. We also had a doctor for infectious diseases, plus I believe two or three more. You can always call me and I can answer as many questions as possible. After Don's lungs were affected his muscles were affected a year later.