@puser, if you are looking for a specialist, you could explore the appointment process with Mayo Clinic, http://mayocl.in/1mtmR63. Appointments are not guaranteed as it depends on availability and whether or not Mayo Clinic providers think they can provide additional treatment to what your daughter is already receiving. You could ask your daughter's provider for a referral as well. @puser, does your daughter have additional appointments scheduled, or are you in the searching process?