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Just diagnosed with Chronic NK Cell Leukemia. Please help my daughter

Blood Cancers & Disorders | Last Active: Feb 14, 2020 | Replies (8)
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@puser

I would also like to add that my misunderstanding that NK-cell leukemia is related to CLL was what led me to post on this forum. Is there another forum that is more related to NK-cell type (i.e T-cell LGL) ?
Since the decease is pretty rare, I am looking for a referral to an oncologist or a practice specializing in NK-cell leukemia. Does anyone have any information on that ? Thanks

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Replies to "I would also like to add that my misunderstanding that NK-cell leukemia is related to CLL..."
Justin McClanahan, Moderator | @JustinMcClanahan | Feb 12, 2020

@puser, if you are looking for a specialist, you could explore the appointment process with Mayo Clinic, http://mayocl.in/1mtmR63. Appointments are not guaranteed as it depends on availability and whether or not Mayo Clinic providers think they can provide additional treatment to what your daughter is already receiving. You could ask your daughter's provider for a referral as well. @puser, does your daughter have additional appointments scheduled, or are you in the searching process?

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