Autoimmune disease and thrombocytopenia

Does Mayo treat patients with pancytopenia causing blindness?

Good morning @rojo36 When I was first diagnosed with an autoimmune disease, I read this book. It was very interesting. https://donnajacksonnakazawa.com/autoimmune-epidemic/ If you’re concerned about your children, you can always start be making a medical family tree. My sister did this when both of us were diagnosed with different diseases. We went as far back as we could and then, forward. The book that I mentioned, lists all the known autoimmune diseases. A family tree will give you a head start if anyone in the family gets something unusual. Best of luck to you! And I’m glad that things are under control

Hello @rojo36, One of the tools I use when trying to find the latest medical research and information is Google Scholar (https://scholar.google.com/). It's nice because you can easily click the year at the left and get the newest or all of the search results. I did a search using the phrase "autoimmune thrombocytopenia treatment" and came back with quite a few links that might interest you.
https://scholar.google.com/scholar?as_ylo=2020&q=autoimmune+thrombocytopenia+treatment&hl=en&as_sdt=0,24
Just my opinion but I think no matter what health condition you have, if you can eat healthy, keep moving ☺ and maintain a positive attitude, you can face whatever comes up. Sounds like you have that under control!

I can’t offer any advice on thrombocytopenia. I have MDS/MPN Overlap with Thrombocytosis and MF. With Thrombocytosis I have a high platelet count. You have a low platelet count. Wondering if you have had a bone marrow procedure and a molecular panel to determine which genes have mutated.

I have pancytopenia which among other issues is causing me to go blind. Wonder, would a bone marrow transplant help me from further losing the rest of my eyesight? Very frightened and depressed in backwards Ocala, Florida. Help! But still trying to smile. (Please)

Yes, I have been diagnosed with Thrombocytopenia and is associated these two diseases cancer and leukemia and why I see my oncologist every 3-6 months during flareups when my immune system is being heavily taxed.
Fortunately for me I was a collegiate swimmer and competitive cyclist, and my heart is super strong and developed a new “highway system” around the blockage.
We finally found a progesterone based birth control that I could tolerate to help balance my hormones. My issue was menstrual cycles that would last for 2 to 3 weeks when I had a tubal ligation procedure done when my health Took a severe downturn.
I was taken off the progesterone after my heart attack and my hormonal imbalance begin all over again sending me into periods of dysfunction.
Today I am on the lowest dose of blood pressure medicine possible just to protect my heart because I’ve never had high blood pressure or high cholesterol. My heart health regarding blood pressure and cholesterol has always been fantastic. I’ve never had high blood pressure or high cholesterol and my heart rate is always been in the high 40s low 50s. In fact my good cholesterol has always been very high and my bad cholesterol is always been very low. I am a conundrum.

don't know if this will help but here is my input: I have pancytopenia, also was a competition swimmer in high school. Cholesterol is always good, am on three medications for the heart but at age 82 I guess it can be expected. What is worrying me very, very immensely is the fact I am going blind from (I guess) the pancytopenia. Think that possibly a bone marrow graft may help the vision loss. Need help on this from somewhere. Where? TThe possibilty of blindness is terrifying. I have vision loss now. Am crying and praying.

@peach414144 I know it can be terrifying to focus on the possibility of blindness. I wished I had a magic answer for you. Have you discussed your thoughts and feelings with your doctor? Is there a possibility of getting a second opinion from a different eye doctor? There can be many causes for vision loss. VisionAware.Org has some good information that may provide some ideas or help for you.
https://www.visionaware.org/info/your-eye-condition/eye-health/symptoms-of-vision-problems/125

My daughter has been diagnosed with thrombocytopenia and is in her 34th week of pregnancy. She is receiving weekly IV treatments, but last night developed high blood pressure, was extremely hot, and ended up at the ER. They released her at 4:00 this morning. None of the OB/GYN doctors caring for her have ever cared for a patient with this, so can you tell me how much of a concern this new condition is? They plan to induce labor on the 28th when her son is at 37 weeks. Thank you.