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My MAC and bronchiectasis treatment
MAC & Bronchiectasis | Last Active: Feb 19, 2020 | Replies (48)Comment receiving replies
I've been on the Big 3 for around 4 months. I am doing my first spudem (spelling) sample in March after starting. So far, the only thing that I have is ringing in the ears. I also do the 7 % saline twice a day. I did not lose weight. In fact, I've gained 20 pounds. I was fine the way I was. I learned that I could travel and lead a pretty normal life so far. I do exercise at least 4 times a week. I have very little coughing at this time but I do get out of breathe easier.
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@tinaesims I’m glad to hear you’re doing so well! I do hope you’re getting regular checks of your hearing. I already had some tinnitus and some mild high frequency hearing loss when I started the Big 3 daily (I guess from my age, 69, and lots of music exposure and loud kids over the years). I had follow up testing every 3 months, and at about 6 to 7 months in, they detected a small loss of hearing and we stopped the azithromycin. The ID doc substituted ciprofloxacin. My hearing has been stable since then, but my understanding is that once those cells are damaged, you don’t usually get that function back. The most sensitive test they did on my ears was called DPOAE (Distortion Product Otoacoustic Emissions testing) and they said it would be the earliest to pick up new damage.