← Return to Problems After TBI: Fibromyalgia or Something Else

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@meme2eight

My heart goes out to you! I can only imagine what it must be like to have a young child and spouse and try to keep going as much as you can! I had an chronic 'back ache' and often was unable to attend extended family gatherings which made me feel totally 'out of it'. My spouse passed away unexpectedly, and after a few 'falls' with several of my kiddos trying to help me get help, I actually walked out of a couple of hospitals, had MRI's on my cervical area, and lumbar area. I really felt like life was leaving me as it was getting 'dangerous' to even walk with a walker. FINALLY, the neurologist I was seeing sent me to Neuro surgeon who had looked at the MRI's for the current Dr. I was seeing..and saw something suspicious as the report showed the Cervical MRI grazed the Thoracic area. I was sent to the Neruo Surgeon, who sent me for an MRI immediately on my Thoracic region. BINGO! I had a calcified tumor wrapped around my spinal cord. in the Thoracic area! After two twelve hrs surgeries and a few vertebra removed and rods and screws in their place. I am living on my own, which DID require selling my home in another city and moving close to two of my children and living in a senior apt.complex. As an eighty some thing widow, I am enjoying life as much as possible. I do use my walker after a few falls.....have neuropathy in my left leg that still doesn't always get the 'message from the brain. I do have some nerve damage still, (taking 600 gabpentin sp?...never can spell that correctly) lol and also some Tramadol as needed for the nerve pain since there were lots of moving around of muscle and nerves tissue trying to access as much of the tumor as possible w/o disturbing the spinal cord as the tumor had been there so long that it was calcified. Bottom line is: please hesitate to classify someone with chronic pain as being a 'whinner' if Dr.'s can't diagnose the source of their pain......had many different suggestions as to 'what I would do if I were you" to 'forget about hurting. My heart goes out to 44000. I certainly will be praying for you. Wish I had something tangible to offer as I feel your pain.

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Replies to "My heart goes out to you! I can only imagine what it must be like to..."

Thank you I almost cried reading this because the other day it was me and my 5 year old alone at home and I could barely walk and he let me put my hands on his shoulder to walk around just so sweet lol and I started thinking to myself am I going to need a Walker. Like some days are good and others just kill me and I cant move I dont want to get up. I'm not depressed and I dont feel sorry for myself I try to stay active. But man. Than this morning I coughed up blood and I've been pooping blood for the last two weeks I'm tired of being poked and analyzed and studied. Just tired. Hopeful. But tired.