There is also a Facebook group called Whipple Surgery Survivor Group. I sure you would find someone like you in that group.

I had my Whipple 5 1/2 years ago. The surgeon did not remove my entire pancreas, but the part that was left was so bad that it was not reattached to my digestive system. I asked the surgeon why he didn't remove the entire pancreas. He told me that my surgery had already lasted 8 1/2 hours and he didn't want to take the time to remove the rest of it.

I had been a Type II diabetic for 5 years before I was diagnosed with pancreatic cancer. I had learned to control my diabetes with exercise and diet. The only real difference now that I am a Type I diabetic is that I now use insulin as well as watching what I eat (along with Creon).

I also have to deal with fatigue. I have not been affected by nausea and sickness.

I was able to get on Social Security Disability. My understanding is that pancreatic cancer just about guarantees that you will qualify for disability. I filled out the application online. It may take some time, but don't become discouraged and give up trying.

I hope that you will find some answers with testing that you have scheduled.