← Return to Total Pancreatectomy
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Pancreatic Cancer | Last Active: Apr 1, 2023 | Replies (30)
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Replies to "I’m so glad to ‘meet you’ @luckyone4321 – welcome to Mayo Clinic Connect. I also wanted..."
I am going to be completely honest...I am having a hard time accepting my “new life” and accepting my limitations. My son keeps me on my feet which helps both my mind and body. I would love to be able to go for short walks (we live by a lake) and enjoy some physical activity but unfortunately every time I’ve tried, my blood sugar drops very low. I’ve tried eating slow burning carbs prior to the walk but I will still get extremely weak and need to stop and sit down. I have seizures quite often due to my low blood sugars even though I do have a CGM device (Dexcom) and a insulin pump. My doctors are still trying to figure out the right amount of insulin for certain times of the day to prevent lows. I did however just get a newer version of the Continuous Glucose Monitor (in my arm) and it automatically shuts off all insulin when it senses that my blood sugar is dropping! It’s amazing. But I still deal with the extreme fatigue/weakness and that I can’t seem to find a fix for. To cope with my stomach pain/discomfort I've tried over the counter medication like Tums and I take Zofran for nausea as well as andi-gas pills. I’ll use a heating pad or a weighted blanket, I’ve tried lying down as well as standing and it doesn’t seem to make a difference.
I hope I answered your question correctly! I am still mourning my old self and sometimes I find myself in sort of a “denial phase.” I am open to new ways to cope and manage both mentally and physically! I appreciate your response and I am so happy I found this page! Thanks again!