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Psychiatric Problems Associated With Epilepsy

Epilepsy & Seizures | Last Active: Oct 30, 2021 | Replies (48)

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@jakedduck1

@deeebeee
I am curious if your son has a mental health diagnosis that may prevent him from understanding the potential seriousness of this condition?
I know it's very frustrating. I deal with similar issues with my cousin.
Best wishes,
Jake

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Replies to "@deeebeee I am curious if your son has a mental health diagnosis that may prevent him..."

Good morning,

Thats a good question, but no he does not.... he is stubborn and has
never even liked to take aspirin or cold medicine.
He was 22 when he had his first set or 'episode' of back to back seizures.
No history at all, he has only had 3 separate
incidents but, each time he is sleeping and has between 4-7 within a 90 min
window. Each one is much worse than the
previous and they start being closer together.

The very first time he 5 in a row and literally almost bit his tounge
off. He also is big guy ... a team captain and starts
every game. He will have his entire face and chest covered in popped blood
vessels, and the doctor says there also high amounts
of acid in his blood from being released by muscle strain. Not sure if
that happens to everyone, but even with those remaining
after effects he had no recollection of anything and I had to beg him just
to let me take him to the ER.

They prescribed meds and said after about a week he didn't like the
way he felt. He was slurring his speech, it made him forgetful.
We still had no idea why he had the seizures, all tests came back
normal. No one stressed the importance of taking this medicine or
even explained that he could have a condition. We couldn't get a follow up
with a neurologist for about a month. So he quit taking the meds w/o
telling myself or his wife. Only 5 days of no meds and he again in his
sleep started a string of seizures. He lives 5 minutes from me and Ijust
as I walked in, he was starting #3. I told his wife to record it - that may
sound odd but for him I knew it was the only way to get him to as
concerned as we were.

This time was really bad, in total there was 6. He was combative in
between seizures. It takes aprox 20 min to 'wake up' and usually have a
10-15 min
window before the next one will start. We called 911 and he refused to
go, just wanted to get in the bathroom to change into dry clothes.
Before he could get the clean stuff on.... he had another seizure, fell
into the tub naked. He had locked the door so the police had to break
down the bathroom door to get to him. It was so traumatizing, they
strapped to gurney no clothes and gave him medicine to keep him calm,
in case he woke up before arriving at the ER.

He woke up in the ER and barely remembered any of it. This time we had
video of me getting a flipflop in between his teeth just in time-
the tongue biting wasn't as bad that time. Him seeing me on video, trying
to keep him leaned sideways and hysterical trying to hold him
IS THE ONLY THING that kept him at the hospital to get the meds changed.
Now it's been a year seizure free..... until 2 months ago.
Apparently he stopped taking pills again! This time it took way longer,
about 2 weeks of no meds before he had another episode.
Everything was just the same. He doesn't understand how or why and seems
like he is in denial.

The doctor only prescribed a month worth of meds.... told me to ensure
my son would come in to see him and get more. So I'll be damned
if the kid breaks all the pills in half and has been taking 1/2 the
recommended dose. He been fine like that but, I'm sure the pills are gone
and
I'm just waiting to get the call. Its so frustrating and I'm at a loss -
he has a almost 3 y.o daughter and this is too much to go through.

Any advice? Stay well and thanks for even taking time to correspond
with me, its appreciated.