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Fibrillary glomerulonephritis

Kidney & Bladder | Last Active: Aug 21, 2023 | Replies (76)

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@predictable

@jennifer208, I am glad to know that you have access to Mayo Clinic in Scottsdale in just 5 days. A longer wait than that would be troubling, in my opinion. I don't have personal experience or special knowledge about glomerulonephritis, but my best friend in college had the disease, and we sort of dealt with it together. That was 65 years ago, though, and I assume medical science has a lot of new therapies for dealing with your disease. Be assured that you're hooked up with the best medical specialists in the nation, and they will ask you to give them your full attention and support in addressing this malady.
Martin

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Replies to "@jennifer208, I am glad to know that you have access to Mayo Clinic in Scottsdale in..."

Thank you so much for your info. I really appreciate it

My husband was diagnosed with fibrillary glomerulonephritis 2 yrs ago. His kidney function has declined to 16 and we are going to peritoneal dialysis classes soon. As a "hail mary" we have request rituximab treatment, which the nephrologist said won't work:(
How have others been treated and was treatment successful?
Thank you