Hi Rosemary!
Aww.. thank you for thinking about me and my Mom, that is very kind.
She is doing alright on dialysis, much better than she was before starting dialysis and better than she was at the beginning of dialysis. The month before dialysis started she was getting progressively weaker, needed a walker to walk anywhere further than just around the house, and was having problems with shortness of breath. Most of that has resolved since starting dialysis, except she is still very fatigued. They attribute this to her anemia, they aren't sire if it's secondary to her kidney failure or another unrelated issue, they're sending her for a colonoscopy. When she first started dialysis she was very dehydrated, dizzy, and nauseous from the fluid removal, this has subsided as they have adjusted for her specific needs- they replace all of the fluid they take off. She hates being on dialysis (who doesn't?) and we are still very hopeful for a transplant.
Her last blood draw in January showed stable antibodies. She had more bloodwork done on 2/3 and if that also shows stable antibodies they will put us back on the paired donation list. We should find out Friday 2/14 or Monday 2/17 hopefully (they say it takes 10 business days to result the labwork). Once we are back on the paired donation list the National Kidney Registry can start looking for a chain for us again. It can take anywhere from 2 weeks to one year for them to find a chain. We've been told that her antibodies will not make it harder for them to find a chain, but I find that hard to believe. She used to have one antibody and now she has 14, that has got to be harder to match? I'm hopeful we will be relisted soon and that they will find a chain as soon as possible.
Thank you so much for your kind words. It humbles me to know that a complete stranger takes the time to think about my mother and I. Thank you.
My thoughts are with you, and your Warrior Mom. My husband and daughter are scheduled for recipient and donor kidney transplants April 15. To date, my husband has not needed dialysis, so here’s hoping...Though you and your Mom have gone through so much, you inspire me, and I am sure, others to keep fighting. Donor pairing was not necessary in our case, but talking about it and sharing with friends has made that possibility important to many. Thank you.