@cleverusername & @rosemarya thank you for tagging me in this discussion about living organ donation. I WISH I had experience with this but I don’t, at least not yet. I am diabetic and have chronic kidney disease (CKD). I had a pancreas transplant (from a deceased donor) in 2005. The transplant was like a personal miracle for me in that some of the complications of diabetes were reversed &/or became stable. However in 2016 it became apparent that my kidney function was worsening and I would need a kidney transplant. I’ve been approved, accepted & listed for kidney transplant at Mayo in Rochester. I am also looking for a living kidney donor. I am very interested in paired donation. Thus far I have not found a willing/suitable donor for myself or to participate with me in a chain. I’m starting my 5th year of looking & waiting. My GFR has bounced between 14 - 42 during this time and is currently 23 so my listing was changed to inactive (20 is typically the cutoff for active listing for transplant). I guess I should be grateful for that because I’m still not on dialysis. I have been hoping for a preemptive transplant to avoid dialysis. But it is hard to maintain hope when there is no donor in sight!

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