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From a Living Donor: One year later, what is your life like now?
Transplants | Last Active: Oct 30, 2020 | Replies (17)Comment receiving replies
@cleverusername, I am delighted to see your donor-to-donor discussion! I cannot think of a better way for donors and potential donors to learn and share firsthand experiences about life after the donation. Did you know that in the recent UNOS annual report, there were nearly 7400 living donor transplants in 2019? A record number!
I have no experience to share since I did not have a living donor. To get started, I want to tag some members who have experience with living organ donation. @threerrr3, @cmael, @taarthi, @jolinda, @rebekahinvt, @cehunt57, @triciaodonnell, @charicen, @ghayden777, @sameeh123, @jgiovann.
Replies to "@cleverusername, I am delighted to see your donor-to-donor discussion! I cannot think of a better way..."
You are most welcome to ask whatever you want.
Today 9 months have passed since the donation.
Creatinine has dropped down to a good figure.
Doing sport with full capacity which was so difficult in the first 4
months.
Even fasting is OK now.
Hydration is very important.
I hope you are doing well.
Best wishes
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@cleverusername & @rosemarya thank you for tagging me in this discussion about living organ donation. I WISH I had experience with this but I don’t, at least not yet. I am diabetic and have chronic kidney disease (CKD). I had a pancreas transplant (from a deceased donor) in 2005. The transplant was like a personal miracle for me in that some of the complications of diabetes were reversed &/or became stable. However in 2016 it became apparent that my kidney function was worsening and I would need a kidney transplant. I’ve been approved, accepted & listed for kidney transplant at Mayo in Rochester. I am also looking for a living kidney donor. I am very interested in paired donation. Thus far I have not found a willing/suitable donor for myself or to participate with me in a chain. I’m starting my 5th year of looking & waiting. My GFR has bounced between 14 - 42 during this time and is currently 23 so my listing was changed to inactive (20 is typically the cutoff for active listing for transplant). I guess I should be grateful for that because I’m still not on dialysis. I have been hoping for a preemptive transplant to avoid dialysis. But it is hard to maintain hope when there is no donor in sight!