Peripheral nerve stimulators

Thanks for your post I find this website very helpful. I have been thru extensive scar tissue therapy and have been told that is not my problem, that I am dealing with nerve damage or compression so I am not sure MFR would help me. The search continues, looks more & more like PNS is the path

Don't give up, there is something out there, we just need to find it.

Dearest texasaviatrix, my heart is so heavy reading your story!! I feel just awful thinking about your situation!

I will be praying for you to have the relief you deserve and that you will experience the comfort of God and His peace through Christ which surpasses human understanding. This is the only thing that gets me through the many fires we all walk through here on this earth.

I know you will find an incredible amount of support, encouragement, understanding and a lot of good information here on Connect.

Take good care and warmest wishes, Sunnyflower. 🙏🌹😊

Hi @lorirenee1 how are you doing? Has your pain decreased after removing the stimulator? I had also wanted to ask you about your experience with the virtual reality therapy? I received the VR goggles to give the therapy on the website a try. Because of my double vision I think I will wait to start. Seems to me the therapy may be more successful without double vision. Hope you are getting positive results. Toni

I would love to hear from people who have had a PNS. Looks like the path I am headed to but still have caution. Wondering how much pain goes down, how long it takes to work to its fullest and do you feel anything from the implant. All with the knowledge that every patient is different

@avmcbellar Hi, Tony! Thanks so much for asking if my pain has gone down without my DRG stimulator. The answer is yes, and no. I felt the electricity mostly in my butt cheeks, and that is much better. It got that I could barely sit down, so that is better. However, I still have very odd shin sensations, that I never had before. I assumed that the stimulator was doing that, but not so sure now. Maybe it takes a bit of time for the tissue to settle down. My shins throb and are like fire when I sleep, and I wear ice packs on them to bed. This is either neuropathy pain that has spread to the shins, of just residual pain from the stimulator. If it does not settle down in a few more days, I will call my pain doc. As far as the virtual reality website, I did book mark and look at it. However, I realized that it probably would not work too well for me, because I was born without depth perception! Those 3D movies that are made, I cannot see the depth. So I doubt the virtual reality will work very well for me. It sounds smart not to try with double vision, Toni. Not a good idea for now. How are you doing in general? This is not an easy road we walk, at all. Let me know how you are doing. Sincerely, Lori

Sparshall I to am about have a stemwave PNS Just don’t know what to expect Look forward to hear about others experience

@spinrosa64 Please read all my writings on Connect about my DRG implant. Any DRG implant reviews on Connect are from me. My entire journey is here. Essentially, I had it implanted 5 months ago, and it never worked much at all. I shut it off about 3 days ago, because not only did it not help my Neuropathy, but I was beginning to feel the electricity surging in me, and it was painful in itself. It is not an easy surgery, by any means. It took easily 3 months to regain energy and not be in pain where the leads and battery were installed. I have done extensive research regarding these stimulators, and it is my impression that they do not work very well for most people. However, the research seems to claim otherwise. I really do wish you well. I do know they help many people. If you go onto any Nevro HF 10 advertisements, many disgruntled patients make negative comments. There are very few good comments. But the good ones, are very good!!! I wish you the very best of luck. I wanted badly that my machine would help, but it did not. LoriRenee1

They really screwed up with the DRG with you. So sorry. Sounds like they put the wrong leads and set it to the wrong settings for you. I’m so sorry. You should NEVER feel the leads or the “electricity” unless YOU want to.
I’m glad you had it removed.

May I ask where on your body was implant put. They are looking to put it in my thigh