still working with small fiber neuropathy

@jimhd , Jim: I am continually amazed how you forge ahead despite your difficulties. I am glad to hear that your wife is there to support , encourage and remind you of your role in the lives of others as you play the piano and lead the Sunday evening service. Your inner resolve is a testament to God working in your life and showing others that despite overwhelming challenges you persevere and seek to bring comfort to yourself and other like minded people with your faith and love of music. Keep the Diesel F250 ready for the more challenging trips. Be prepared as you travel on those snowy roads ,just as you are preparing yourself for the seemingly endless battles of self survival. Jim, you also serve as an inspiration to me and others on Mayo Connect. In deepest regards. David

@jimhd , Jim: I am continually amazed how you forge ahead despite your difficulties. I am glad to hear that your wife is there to support , encourage and remind you of your role in the lives of others as you play the piano and lead the Sunday evening service. Your inner resolve is a testament to God working in your life and showing others that despite overwhelming challenges you persevere and seek to bring comfort to yourself and other like minded people with your faith and love of music. Keep the Diesel F250 ready for the more challenging trips. Be prepared as you travel on those snowy roads ,just as you are preparing yourself for the seemingly endless battles of self survival. Jim, you also serve as an inspiration to me and others on Mayo Connect. In deepest regards. David

@sswartzki I have not tried IGIV. Know nothing about it. Just started Low Dose Naltrexone, which is helping my foot pain. I have never heard of hair falling out from neuropathy. Are you sure it is from this? Are you on any meds that could do this, or any diet changes that could effect hair? You are the first person I have heard about who has this from neuropathy. I do understand though, that it is the least of your problems. Lori

@swartzki

I seem to have started calling you David, and I doubt that's correct. Sorry. I see that's Phoenix' name, not yours.

Did you have a good day today? I guess it probably depends on how you define a good day. Good day for me is to do more than sit in my recliner. Being retired can be a dangerous thing because of the tendency to say I'll do it tomorrow. At least that's true for me.

I practiced the piano today!!! I haven't been, and felt guilty every time I walk past it. It felt good to sit down and play all of the major scales to warm up. I worked on several jazz pieces arrangements by George Shearing. I'll get my hands moving on those songs before I get into my favorite romantic era composer, Mozart, and some 20th century composers - Eric Satie and Claude Debussy and some Gershwin. I know that playing is good for my arthritis in my fingers. That's the extent of exercises that I want to do. I know others wouldn't agree, but different exercises for different people for different reasons. My BA is in music with a focus on piano performance. I wish I could still play as well as I did in my 20s. But I play well enough at church so I don't embarrass myself.

Jim

@swartzki

I seem to have started calling you David, and I doubt that's correct. Sorry. I see that's Phoenix' name, not yours.

Did you have a good day today? I guess it probably depends on how you define a good day. Good day for me is to do more than sit in my recliner. Being retired can be a dangerous thing because of the tendency to say I'll do it tomorrow. At least that's true for me.

I practiced the piano today!!! I haven't been, and felt guilty every time I walk past it. It felt good to sit down and play all of the major scales to warm up. I worked on several jazz pieces arrangements by George Shearing. I'll get my hands moving on those songs before I get into my favorite romantic era composer, Mozart, and some 20th century composers - Eric Satie and Claude Debussy and some Gershwin. I know that playing is good for my arthritis in my fingers. That's the extent of exercises that I want to do. I know others wouldn't agree, but different exercises for different people for different reasons. My BA is in music with a focus on piano performance. I wish I could still play as well as I did in my 20s. But I play well enough at church so I don't embarrass myself.

Jim

@swartzki

I seem to have started calling you David, and I doubt that's correct. Sorry. I see that's Phoenix' name, not yours.

Did you have a good day today? I guess it probably depends on how you define a good day. Good day for me is to do more than sit in my recliner. Being retired can be a dangerous thing because of the tendency to say I'll do it tomorrow. At least that's true for me.

I practiced the piano today!!! I haven't been, and felt guilty every time I walk past it. It felt good to sit down and play all of the major scales to warm up. I worked on several jazz pieces arrangements by George Shearing. I'll get my hands moving on those songs before I get into my favorite romantic era composer, Mozart, and some 20th century composers - Eric Satie and Claude Debussy and some Gershwin. I know that playing is good for my arthritis in my fingers. That's the extent of exercises that I want to do. I know others wouldn't agree, but different exercises for different people for different reasons. My BA is in music with a focus on piano performance. I wish I could still play as well as I did in my 20s. But I play well enough at church so I don't embarrass myself.

Jim

@swartzki

I seem to have started calling you David, and I doubt that's correct. Sorry. I see that's Phoenix' name, not yours.

Did you have a good day today? I guess it probably depends on how you define a good day. Good day for me is to do more than sit in my recliner. Being retired can be a dangerous thing because of the tendency to say I'll do it tomorrow. At least that's true for me.

I practiced the piano today!!! I haven't been, and felt guilty every time I walk past it. It felt good to sit down and play all of the major scales to warm up. I worked on several jazz pieces arrangements by George Shearing. I'll get my hands moving on those songs before I get into my favorite romantic era composer, Mozart, and some 20th century composers - Eric Satie and Claude Debussy and some Gershwin. I know that playing is good for my arthritis in my fingers. That's the extent of exercises that I want to do. I know others wouldn't agree, but different exercises for different people for different reasons. My BA is in music with a focus on piano performance. I wish I could still play as well as I did in my 20s. But I play well enough at church so I don't embarrass myself.

Jim

Hey, Jim. My name is Kim. I am so thrilled that you are playing. I remember your wife reminding you how much the church enjoys it too. I love piano music. (Our church has gone to almost a full band. UGH!) You are doing such a great service for the Lord. I hope you feel good about that. And I'm happy it is bringing you personal joy! I'm trying to navigate this whole thing. I have to convince myself and can live with this. I hope I can find ways to serve as well.