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still working with small fiber neuropathy

Neuropathy | Last Active: Apr 4, 2023 | Replies (61)
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@swartzki

Thanks, David. God is speaking through you today! I don't fear death itself. Like you I really believe that I will go to a wondrous place. I have two big worries: taking care of myself while I'm here and not being around to see my sweet grandbabies grow up. You are right about all of it, and I will try to follow your advice. May I ask how long you have had your diagnosis?

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phoenix0509 | @phoenix0509 | Jan 17, 2020

You are welcome @swartzki , I have had a diagnosis of SFPN since about 2011. Taking care of yourself is a concern of course. I have the same concerns for myself. Its a fear I think we all share that someday we will not be able to do for ourselves. I prefer not to drive, so I ask family for rides. Other than that, I am OK for activities of daily living. I just do not walk much. I am fortunate that I have Grandchildren next door. I have lower expectations for the medical care I receive. Its there bar, not mine. Best to you, David

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