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still working with small fiber neuropathy

Neuropathy | Last Active: Apr 4, 2023 | Replies (61)
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@swartzki

Also, all of my thick, blonde hair fell out. I'm the only person I know of whose lost her hair because of neuropathy. It's terrible, but I would be happy bald if I could eliminate the exhaustion, headaches, and weakness.

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Replies to "Also, all of my thick, blonde hair fell out. I'm the only person I know of..."
lorirenee1 | @lorirenee1 | Jan 14, 2020

@sswartzki I have not tried IGIV. Know nothing about it. Just started Low Dose Naltrexone, which is helping my foot pain. I have never heard of hair falling out from neuropathy. Are you sure it is from this? Are you on any meds that could do this, or any diet changes that could effect hair? You are the first person I have heard about who has this from neuropathy. I do understand though, that it is the least of your problems. Lori

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Rachel, Volunteer Mentor | @rwinney | Jan 14, 2020

Do you take supplements? Im sorry to hear of your hair loss. That would devastate me. Not sure if it'll help your situation but Biotin is great for strengthening hair and nails. I don't know if it promotes re-growth however.

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bailey11 | @bailey11 | Apr 3, 2023

I’m so sorry to read about your symptoms. I also have SFN w autonomic dysfunction and had to stop working. The brain fog, cognitive symptoms, and orthostatic hypotension really impacted my daily life. I’ve had a few relapses and lost a lot of hair. Mine used to be thick so you are not the only one. I lost weight due to the stomach issues w delayed gastric emptying so I thought my hair loss was due to the weight loss and loss of nutrients? Not sure. Have you tried drinking Ensure or Boost to see if your hair grows back?

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