1. < Neuroendocrine Tumors (NETs)

Pituitary tumor symptoms: joint, muscle and body aches

Posted by khauert @khauert, Jan 12, 2020

Hi. I am new to this. And not sure I'm in the right category. I was diagnosed with a pituitary tumor in November. However, I have been experiencing terrible joint, muscle and body aches for a year now. No doctor knows why and nobody can confirm its from the tumor. I'm frustrated and becoming very hopeless and depressed. Can anyone with a pituitary tumor relate to body pain?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

cheryl1 | @cheryl1 | Mar 1, 2020

Body aches pain muscle loss joint pain headaches hair loss extreme Fatique easy bruising weight gain in mid section and more all caused by pituatary tumor. I have Cushings and it took 4 to 5 years to get diagnosed. Hang in there and be strong!

REPLY
cheryl1 | @cheryl1 | Mar 2, 2020
In reply to @bill54321 "God bless and keep you. In Korea, he saved me. He does exist. Be pro-active for..." + (show)
@bill54321

God bless and keep you. In Korea, he saved me. He does exist. Be pro-active for yourself. Seek 2nd, 3rd. or 4th opinions if necessary After all, who know as much as you do?

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Thank you so much. Tough road ahead

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cheryl1 | @cheryl1 | Mar 7, 2020
In reply to @bill54321 "God bless and keep you. In Korea, he saved me. He does exist. Be pro-active for..." + (show)
@bill54321

God bless and keep you. In Korea, he saved me. He does exist. Be pro-active for yourself. Seek 2nd, 3rd. or 4th opinions if necessary After all, who know as much as you do?

Jump to this post

Thank you for your kind words

REPLY
cheryl1 | @cheryl1 | Mar 7, 2020
In reply to @astaingegerdm "@cheryl1 - hang in there! Hope they can locate tumor soon so you can get rid..." + (show)
@astaingegerdm

@cheryl1 - hang in there! Hope they can locate tumor soon so you can get rid of it. Do you take anything for the blood sugar? My daughter had to take insulin Up to her surgery- her sugar went back down at once postop.

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Having ipss at mayo in Jacksonville Thursday. I hope Mayo will help me. I will keep you posted. I had ipss at mayo 12/3. 3mm cyst removed
It did not stain for acth. Now the ipss 3/12

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jun 18, 2020

Hello @cheryl1,

In March you had an appointment scheduled at Mayo/Jacksonville. I hope that appointment went well. Did you gain any new information? I hope you are feeling better. I would love to hear from you.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jul 20, 2020
In reply to @cheryl1 "Having ipss at mayo in Jacksonville Thursday. I hope Mayo will help me. I will keep..." + (show)
@cheryl1

Having ipss at mayo in Jacksonville Thursday. I hope Mayo will help me. I will keep you posted. I had ipss at mayo 12/3. 3mm cyst removed
It did not stain for acth. Now the ipss 3/12

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Hello @cheryl1,

I was just wondering how you were doing? I hope your appointment at Mayo/Jacksonville was helpful to you. Will you post again with an update?

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cheryl1 | @cheryl1 | Jul 20, 2020
In reply to @astaingegerdm "@cheryl1 She took Metformin too. She is a very strong person -we couldn’t believe how tough..." + (show)
@astaingegerdm

@cheryl1 She took Metformin too. She is a very strong person -we couldn’t believe how tough she was when going through this horrible illness. You are strong too- see what you have been through already!
There is a Cushing’s group on Fb by the way.
I would appreciate it very much if you would post a brief update now and then when you have the energy!

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I had 2 pit surgeries and a BLA all within 5 months at mayo. I am now in recovery stage trying to build muscle and loose weight. I realize now what a challenge I have ahead of me.

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1 reply
cheryl1 | @cheryl1 | Jul 20, 2020

Pituatary tumor can mean Cushings. Cushings causes fatique thin skin bruising hair loss diabetes bone loss aches and pains

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Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Jul 20, 2020

@cheryl1 - You have been through so much in such a short time- Are you on any medications now? What do you experience being your biggest challenge now?

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jul 21, 2020
In reply to @cheryl1 "I had 2 pit surgeries and a BLA all within 5 months at mayo. I am..." + (show)
@cheryl1

I had 2 pit surgeries and a BLA all within 5 months at mayo. I am now in recovery stage trying to build muscle and loose weight. I realize now what a challenge I have ahead of me.

Jump to this post

@cheryl1 Thank you so much for the update. You certainly have been through a lot over the past five months. Will you be going to physical therapy in order to build muscle?
Do you find it difficult to keep up your determination and courage to complete the recovery process?

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