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Pituitary tumor symptoms: joint, muscle and body aches

Neuroendocrine Tumors (NETs) | Last Active: Jul 18 1:10pm | Replies (146)
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@astaingegerdm

@cheryl1 - Did you get the cortisol and ACTH testing done in Jacksonville? Endocrinologist? Any MRI yet?

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Replies to "@cheryl1 - Did you get the cortisol and ACTH testing done in Jacksonville? Endocrinologist? Any MRI..."
cheryl1 | @cheryl1 | Feb 29, 2020

Yes MRI cortisol and acth. Dexamethasone suppression 3 times. MRI done locally in lake county and mri done at Mayo. Both showed tumor/ cysts. Dr Chaichanna did pss Dec 3rd. Removed tissue in area. Did not stain for acth. My levels are worse now and my glucose is horrible since procedure. The pathology report states tissue of pituatary. Going for ipss scheduled march 12th at mayo in jacksonville. I feel like I am slowly dying and have no life. Cheryl

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cheryl1 | @cheryl1 | Mar 1, 2020

Yes 3 dexometsone suppression test. 24 saliva 2 day cortisol, MRI all at mayo in jacksonville

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