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I was told 4 years ago at mayo in Jacksonville I had fibromyalsia. 4 months ago mayo now knows I have Cushings I had pss December 3rd having ipss march 13 I hope they can locate tumor

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Replies to "I was told 4 years ago at mayo in Jacksonville I had fibromyalsia. 4 months ago..."

@cheryl1 - I’m glad you have a diagnosis but sorry it’s Cushing’s. Actually, I think the hardest time is time spent before getting a diagnosis.
In 2 weeks it’s 10 years ago that my daughter had her surgery to remove her pituitary adenoma. The body will return to normal afterwards. My daughter had gained a lot of weight which caused the characteristic purple striae- stretch marks. Her goal now is to eventually have plastic surgery to remove the extra abdominal skin. She is in good health, working hard and keeping fit.
I hope all goes well with you. Mayo is a great place for this. Whenever you have time and energy I would appreciate an update.

@cheryl1 A pituitary adenoma can cause your pituitary gland which directs your other hormone producing glands to shut down. When that happens, your other glands stop producing cortisol. I was sent to rheumatology due to joint pain from my tumor. It was not rheumatoid arthritis.(tests were negative) It was the lack of cortisol from my adrenal glands. Pituitary tumors grow very slowly and mine had been there probably 10 years. It was the size of a ping-pong ball pressing on my optic nerve. My thyroid function was zero. I had lost weight unexplainably. The tumor was found when they did cataract surgery on my eye because I could not see. Over in the past 19 years. I have done a lot of reading. These tumors throw your body completely out of whack. I had so much joint pain I could not get out of my car. They gave me a shot of steroid and I thought I was cured. It did not cure me. It simply relieved my symptoms of adrenal insufficiency.
Doctors do not think of pituitary tumors when all these weird symptoms happen. If I had not had cataract surgery, which did not clear my eye, I don’t know how long it would have taken for them to find the tumor.