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Pituitary tumor symptoms: joint, muscle and body aches

Neuroendocrine Tumors (NETs) | Last Active: Jul 18 1:10pm | Replies (146)
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@cheryl1

I was told 4 years ago at mayo in Jacksonville I had fibromyalsia. 4 months ago mayo now knows I have Cushings I had pss December 3rd having ipss march 13 I hope they can locate tumor

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Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Feb 27, 2020

@cheryl1 - I’m glad you have a diagnosis but sorry it’s Cushing’s. Actually, I think the hardest time is time spent before getting a diagnosis.
In 2 weeks it’s 10 years ago that my daughter had her surgery to remove her pituitary adenoma. The body will return to normal afterwards. My daughter had gained a lot of weight which caused the characteristic purple striae- stretch marks. Her goal now is to eventually have plastic surgery to remove the extra abdominal skin. She is in good health, working hard and keeping fit.
I hope all goes well with you. Mayo is a great place for this. Whenever you have time and energy I would appreciate an update.

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