1. < Pancreatic Cancer

Recent diagnosis of pancreatic cancerous tumor - awaiting PET

Posted by minimia @minimia, Jan 9, 2020

My 70 yr old father in law became ill around thanksgiving with chronic diarrhea; thought it was the flu, started to loose lots of weight, tired, became jaundice; finally got appt at GP and they did MRI that showed "tumor" in pancreas; GP referred to Mayo took a few weeks to get appt over Holidays; loosing more weight; sleeping all the time; more jaundice; gets consult, take him off blood thinners; then put stent in to open duct to liver to liver; find cancerous tumor; xray chest - looks clear; schedule for PET next week to see if cancer has spread anywhere; if all clear then he has to gain weight, have chemo to shrink tumor, and then surgery to remove. Any insights on how family can support him through this process and what to ask Dr's and look out for. Thanks in advance

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minimia | @minimia | Feb 24, 2020

Thanks for asking, here is the CRAZY thing, Mayo sent my father in law home to die of sepsis, since they stated they could do nothing more for him to stop the sepsis; we went for our last visit to see him, so we thought; He stopped all his meds; Insulin, antibiotics, pancreatic enzymes, etc... He was very weak, needed help in the shower, bathroom.... etc.. Last week he actually started to feel better, looks less jaundice, gets in and out of the shower etc... The family is trying to convince him to go back - perhaps to a different lab to get blood work done to see if the sepsis is actually gone, He says his body is wore out, he still has very little appetite... It's been hard on the family all these ups and downs...

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kjrita | @kjrita | Feb 26, 2020
In reply to @minimia "Yes, I plan to provide feedback to the pharmacy; I also have the "hard copy" comment..." + (show)
@minimia

Yes, I plan to provide feedback to the pharmacy; I also have the "hard copy" comment card, The PA actually called to apologize so that was good. Principal diagnosis was Cholangitis Acute ; many other Active problems - obstructive jaundice, malignant neoplasm of pancreas head, diabetes, etc.. Collapsed from Cholangitis and dehydration - we think; Stent was not functioning properly; He is feeling much better today at home; He will need to follow-up with primary care Dr on the 27th and then meet with Oncologist; he is nervous about the chemo and potential side effects so we hope to learn more from that visit.

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@minimia - I have had the same kind of interaction with the pharmacy. I sat there for two hours after my surgery waiting for correct scripts. I have given feedback. Otherwise, Mayo people are so awesome! I went through chemo, radiation and then, surgery. Dr. Truty does PET scans also. Here are my story and video with inputs from Dr. Truty in the story and the video. Hang in there! One day at a time and stay positive. If you are caregiving, get your own self-care. Hugs, Rita https://sharing.mayoclinic.org/2020/02/05/aggressive-approach-to-pancreatic-cancer-yields-outstanding-outcome/

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minimia | @minimia | Apr 2, 2020

Back in the "game"; After being sent home to hospice from septic shock due to contained gall bladder rupture 2/5 and receiving last rights, My father in laws health has improved at home back to his baseline - miracle? who knows but its great news and we are cautiously optimistic; other great news - he was able to meet and hold his new 1st great grandchild. He went back for re-evaluation at oncology clinic 3/17 had CT scan chest, abdomen, pelvis; blood work etc.. Glucose uncontrolled; due to thinking no hope... From what I can tell latest CT scan showed slight interval enlargement of pancreatic mass (34 by 25 mm) use to be (31 by 25 mm) ; All have agreed to start treatment again; discussed fact that steroids given during chemo could cause diabetic emergency so they will dose adjust FOLFIRNOX starting next week ; Plan is for neoadjuvant therapy followed by possible surgical resection if he improves symptomatically.. My inlaws are worried since he has been doing so well and wonder i they should rock the boat but want to try … also if he has a shot at being cancer free. Then we all have to worry about COVID... I hope you all are well... and please share your thoughts ...

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Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 2, 2020
In reply to @minimia "Back in the "game"; After being sent home to hospice from septic shock due to contained..." + (show)
@minimia

Back in the "game"; After being sent home to hospice from septic shock due to contained gall bladder rupture 2/5 and receiving last rights, My father in laws health has improved at home back to his baseline - miracle? who knows but its great news and we are cautiously optimistic; other great news - he was able to meet and hold his new 1st great grandchild. He went back for re-evaluation at oncology clinic 3/17 had CT scan chest, abdomen, pelvis; blood work etc.. Glucose uncontrolled; due to thinking no hope... From what I can tell latest CT scan showed slight interval enlargement of pancreatic mass (34 by 25 mm) use to be (31 by 25 mm) ; All have agreed to start treatment again; discussed fact that steroids given during chemo could cause diabetic emergency so they will dose adjust FOLFIRNOX starting next week ; Plan is for neoadjuvant therapy followed by possible surgical resection if he improves symptomatically.. My inlaws are worried since he has been doing so well and wonder i they should rock the boat but want to try … also if he has a shot at being cancer free. Then we all have to worry about COVID... I hope you all are well... and please share your thoughts ...

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My goodness @minimia, that certainly not the outcome that your family was preparing for. Tremendous news. While the news is good and you are all being cautious optimistic, I'm sure you're also elated and exhausted. How are you doing? Is everyone able to catch their breath and get some rest for the next phase?

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jan 17, 2022

To All the Members of this discussion group, please note the free, virtual webinar that is being offered by the National Pancreas Foundation that will take place this week.

Here is information about a virtual webinar being held this Thursday, January 20, at 7 p.m., EST, by the National Pancreas, Foundation. There is no cost to attend. It will provide information that could be helpful to you as you deal with pancreatic cancer. Here is the link with more information.
https://pancreasfoundation.org/support-current-npf-events/

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