How You Experience Autism

Posted by Ginger, Volunteer Mentor @gingerw, Jan 8, 2020

I came across this article today, posted on The Mighty. I "get" it, as it is familiar to me. How do you react to her vision of the manifestation in her life?
https://themighty.com/2016/04/what-does-autism-feel-like/
Ginger

Interested in more discussions like this? Go to the Autism (ASD) Support Group.

@auntieoakley

Thank you, just feeling exhausted and isolated. I lurk a little now and then, but question my own judgment for writing helpful comments at this time.

Jump to this post

@auntioakley Your comments and responses have always appeared to me to be timely and accurate. Feeling isolated in these times is understandable. Glad to hear you are at least lurking at times. I think they are others in your same shoes.
Ginger

REPLY
@auntieoakley

Thank you, just feeling exhausted and isolated. I lurk a little now and then, but question my own judgment for writing helpful comments at this time.

Jump to this post

I agree with @gingerw, @auntieoakley. I appreciate the insights and perspectives you bring to this conversation.

REPLY
@lioness

@merpreb Hey guys I get my food and meds delivered from Walmart food 35.00 free delivery

Jump to this post

@merpreb
I do the same thing through a Michigan-based supermarket called Meijers. I paid a yearly fee, then, if I order at least $35 of groceries, delivery is free. I always give the person who delivers a tip as I really appreciate the service. It is nice not to have to get out of the house and carry heavy bags of groceries in all kinds of weather.

REPLY
@hopeful33250

@merpreb
I do the same thing through a Michigan-based supermarket called Meijers. I paid a yearly fee, then, if I order at least $35 of groceries, delivery is free. I always give the person who delivers a tip as I really appreciate the service. It is nice not to have to get out of the house and carry heavy bags of groceries in all kinds of weather.

Jump to this post

@hopeful33250- Linda, @lioness wrote this, not me. My husband is shopping now.

REPLY

@gingerw , hello from a safe distance! I am sitting here at Taco Mama's, where I just had a delicious burrito bowl. The only real carbs were in a few little black beans.

My sweetie is undergoing surgery, again, to place a drain into the pericardial sack. They are updating me every hour or so. This has been a sensory issued person's nightmare. Construction is going on, and it is so loud. The parking garage is creepy.

But my faith is greater than the creepy parking garage. My love for my husband is greater than the pain of walking forever with my cane in the heat so I don't lose my parking spot. My hope is,steadfast, because I have friends like you who have said I can be strong when I need to be.

Autism does not go quietly away when under pressure. But it has learned how to make the best of a hard situation. And to practice mindfulness and self care.

I am alone, because only one person can be with him. All thanks to Covid19.

Just checking in.
Thanks for befriending this Autie.
Love and light,
Mamacita Jane

REPLY
@mamacita

@gingerw , hello from a safe distance! I am sitting here at Taco Mama's, where I just had a delicious burrito bowl. The only real carbs were in a few little black beans.

My sweetie is undergoing surgery, again, to place a drain into the pericardial sack. They are updating me every hour or so. This has been a sensory issued person's nightmare. Construction is going on, and it is so loud. The parking garage is creepy.

But my faith is greater than the creepy parking garage. My love for my husband is greater than the pain of walking forever with my cane in the heat so I don't lose my parking spot. My hope is,steadfast, because I have friends like you who have said I can be strong when I need to be.

Autism does not go quietly away when under pressure. But it has learned how to make the best of a hard situation. And to practice mindfulness and self care.

I am alone, because only one person can be with him. All thanks to Covid19.

Just checking in.
Thanks for befriending this Autie.
Love and light,
Mamacita Jane

Jump to this post

@mamacita, I was just thinking about you and voila you post an update. Thank goodness you have your years of practising mindfulness and self care to help you through times like these. Your family's health issues started long before COVID. This has been a long marathon for you. Who do you go to for strength, comfort and just to be able to let go for a minute?

REPLY
@mamacita

@gingerw , hello from a safe distance! I am sitting here at Taco Mama's, where I just had a delicious burrito bowl. The only real carbs were in a few little black beans.

My sweetie is undergoing surgery, again, to place a drain into the pericardial sack. They are updating me every hour or so. This has been a sensory issued person's nightmare. Construction is going on, and it is so loud. The parking garage is creepy.

But my faith is greater than the creepy parking garage. My love for my husband is greater than the pain of walking forever with my cane in the heat so I don't lose my parking spot. My hope is,steadfast, because I have friends like you who have said I can be strong when I need to be.

Autism does not go quietly away when under pressure. But it has learned how to make the best of a hard situation. And to practice mindfulness and self care.

I am alone, because only one person can be with him. All thanks to Covid19.

Just checking in.
Thanks for befriending this Autie.
Love and light,
Mamacita Jane

Jump to this post

I'm so sorry that the love of your life is going through yet another procedure, @mamacita. I do hope this one is helpful to him. Be courageous my dear friend. This too will pass. Love, light and peace to you!

REPLY
@mamacita

@gingerw , hello from a safe distance! I am sitting here at Taco Mama's, where I just had a delicious burrito bowl. The only real carbs were in a few little black beans.

My sweetie is undergoing surgery, again, to place a drain into the pericardial sack. They are updating me every hour or so. This has been a sensory issued person's nightmare. Construction is going on, and it is so loud. The parking garage is creepy.

But my faith is greater than the creepy parking garage. My love for my husband is greater than the pain of walking forever with my cane in the heat so I don't lose my parking spot. My hope is,steadfast, because I have friends like you who have said I can be strong when I need to be.

Autism does not go quietly away when under pressure. But it has learned how to make the best of a hard situation. And to practice mindfulness and self care.

I am alone, because only one person can be with him. All thanks to Covid19.

Just checking in.
Thanks for befriending this Autie.
Love and light,
Mamacita Jane

Jump to this post

It is so good to hear from you @marmacita despite your sad news. Your feelings for your husband are so sweet. I'm still in love with my husband of 39 years. It must be torturous, your long journey with him and your daughter. You are a strong and powerful woman, relay on that! I'm wondering how your daughter is?

REPLY
@colleenyoung

@mamacita, I was just thinking about you and voila you post an update. Thank goodness you have your years of practising mindfulness and self care to help you through times like these. Your family's health issues started long before COVID. This has been a long marathon for you. Who do you go to for strength, comfort and just to be able to let go for a minute?

Jump to this post

@colleenyoung , I go to the Rock, my strong tower. My hiding place. My Shelter in the time of storm. I read my daily devotional, from a slew of favorites collected over the years. I play praise and worship music. I listen to the birds. I daydream. I pray. I read Psalm 91. I play the piano. I clean and organize. I read. I constantly review my bag of tricks and find other ways to self regulate. I spend time with my family. I try to connect with friends. I come here.

Love and light,
Mamacita Jane

REPLY
@merpreb

It is so good to hear from you @marmacita despite your sad news. Your feelings for your husband are so sweet. I'm still in love with my husband of 39 years. It must be torturous, your long journey with him and your daughter. You are a strong and powerful woman, relay on that! I'm wondering how your daughter is?

Jump to this post

@merry, it is good to see you! Thank you for asking about my daughter. She is slowly recovering at a rehab facility in Tennessee. To find her way back is not easy. It will take a lot of work on her part. She is in a good place, and we hope to see her when Covid19 settles down.

We are able to talk wirh her frequently. They are working on trying to get her off the ventilator permanently. Her lungs are damaged and we don't know if that will be possible. But we have hope.

We just take it one day at a time.
Love and light,
Mamacita Jane

REPLY
Please sign in or register to post a reply.