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DiscussionLow Dose Naltrexone and Neuropathy
Neuropathy | Last Active: Apr 30 8:05pm | Replies (129)Comment receiving replies
Replies to "Hi I'm Shelley I'm on 600 milligrams of Gabapentin twice a day and it's not working..."
Hi Shelley, my wife has PN in her feet and now starting up her legs a bit. She had a not so fun time with gabapentin about 2 years ago. I can't remember all of her symptoms but I know she had dizziness and fuzzy thinking, hallucinations at night as well as trouble sleeping. It had a number of negative effects with zero benefits. She weaned off that and so far has not tried any other drugs. She has burning in her feet to about an 7-8 level on perhaps 3 out of 4 days on average with a relief day at about a level 4 the other day. She does not leave home at all any more unless she has a doctor appt. or something else that requires her to leave, so she keeps her feet uncovered all day with a fan blowing on them day and night. She smokes cannabis about 2-3 times per week for some relief, usually 3-4 hours before bedtime, which helps her get to sleep. It looks like she is going to try low dose naltrexone next.
How does your neuropathy manifest? You say its getting harder to walk, so its in your legs mostly? Can you describe your pain and/or other bad effects of your neuropathy? Are your problems walking related to numbness? Just looking to get a bead on your particular issues as, although there are usually some similarities among PM sufferers, there are always some unique characteristics. Often you can get some helpful ideas from people on Connect if you can share a bit more about what you are going through in a little more depth.
Hope you can find some thing that helps you. Best, Hank