Apparatus for Neuropathy

this was supposed to be in response to @lorirenee1 re daily challenges. The way these posts and replies are set up can be confusing - maybe someone can make it better/easier?

@treziesmom When you reply to a certain person put thev@before name before you begin your letter,like I did, understand

@treziesmom helloyou two and more, it is my understanding from Colleen that when you reply you do not need to include the "Mayo handle" i. e. @.....of the person you are replying to. However, if you want to include anyone else mentioned in that post then yes, you must include their Mayo name somewhere within the body of the text of your message. 😊

@sunnyflower Oh Sunny, you tech whiz you! You are right about that. Should we have you put on the technical help desk now? Sorry, I couldn't help it, you're so sweet, I get a kick out of you like every day. Hank

Hi treziesmom , you inadvertently replied to the post next to the one you were trying to reply to. Stuff like that can happen, no big deal. But good for you, you just put Lori's @lorirenee1 member name in your post so she will be notified to look. That is the best thing you can do when you are writing with a specific person in mind, is to put their member name (the "@" name or some people call it the peron's "handle") Just use this in your post to someone and they should get an email telling them you mentioned them.

I see you have been a member for over a year. Can you describe how neuropathy has been affecting you? I see from your previous posts that you are having major problems getting the pain meds you need from the doctors. How does your pain manifest, when is it worse during the day/night, what types of things (besides pain meds) have you found to do for the pain? People here are interested in anything you'd like to say on this subject. I feel horrible that they are denying you what you need so badly, you are not alone. Many here have trouble getting the meds they need. In trying to deny the drug addicts and the teenagers, etc. they are making things difficult for the most vulnerable people who truly need them, those with chronic debilitating pain.

Please post again and tell us your story. Maybe folks will post back to you with some helpful responses. Best to you, Hank

thanks Hank B for your suggestions re Neuropathy - will write more when I have more time - still dealing with my Rx problem - what a nightmare. You are so right about the original purpose re addicts and teens - these "pain Clinics" are a scam taking money from old people on canes and walkers who are on terrible pain and can least afford the $ or the trips to the clinics. I became disabled at the age of 50 and have had much worse pain and surgeries since and my co-pay for the first 2 years was $50 a month - now $25 but Soc. Sec. not enuf to live on despite working 31 years.

@treziesmom

Life becomes difficult and complicated when retirement comes earlier than planned. I managed to hang on until I was 55, still too early. I was fortunate to be approved for Social Security disability the first time I applied. I had a very small amount of money in savings and IRAs, certainly not what the financial advisors recommend in the AARP magazine. The only way we survive is that we own our home with no mortgage, and have no debt. SNAP has made a big difference, along with energy assistance. The Seniors with Disabilities program has been a help to us in finding resources, and our area hospitals, which are all connected, have provided other resources. Important to me is the mental health department, where I can see a therapist at no cost to me, because they accept Medicare.

Because of our income level, our Medicare premiums are covered by the state, and our medications are subsidized so the most we pay for a prescription is $3.60. Our biggest health cost challenge is the annual deductible - unfortunately, we usually pay that in the first month or two of the year.

Prescriptions can be a nightmare. I've been in an Rx mess for 5 months, and I'm hoping it's finally been resolved. It's been about getting prior authorization approval for my morphine. It's a good thing that I haven't been taking the full dose for a long time. If I had, I'd have run out several months ago. As it is, I'm cutting it pretty close because between the doctor and the pharmacy, I'm already 10 days past due for my next refill.

With all of the financial assistance resources available, there are some positive aspects of being old - I turned 70 last month.

It's way past my bedtime. I hope your Rx problem is resolved soon. Keep being the squeaky wheel.

Jim

@treziesmom

Life becomes difficult and complicated when retirement comes earlier than planned. I managed to hang on until I was 55, still too early. I was fortunate to be approved for Social Security disability the first time I applied. I had a very small amount of money in savings and IRAs, certainly not what the financial advisors recommend in the AARP magazine. The only way we survive is that we own our home with no mortgage, and have no debt. SNAP has made a big difference, along with energy assistance. The Seniors with Disabilities program has been a help to us in finding resources, and our area hospitals, which are all connected, have provided other resources. Important to me is the mental health department, where I can see a therapist at no cost to me, because they accept Medicare.

Because of our income level, our Medicare premiums are covered by the state, and our medications are subsidized so the most we pay for a prescription is $3.60. Our biggest health cost challenge is the annual deductible - unfortunately, we usually pay that in the first month or two of the year.

Prescriptions can be a nightmare. I've been in an Rx mess for 5 months, and I'm hoping it's finally been resolved. It's been about getting prior authorization approval for my morphine. It's a good thing that I haven't been taking the full dose for a long time. If I had, I'd have run out several months ago. As it is, I'm cutting it pretty close because between the doctor and the pharmacy, I'm already 10 days past due for my next refill.

With all of the financial assistance resources available, there are some positive aspects of being old - I turned 70 last month.

It's way past my bedtime. I hope your Rx problem is resolved soon. Keep being the squeaky wheel.

Jim

@jimhd can you describe what SNAP is?

@bustrbrwn22 I think Jim's sleeping at this hour. But here you go:
Supplemental Nutrition Assistance Program (SNAP)
Hank