← Return to undiagnosed movement disorder

Discussion

undiagnosed movement disorder

Brain & Nervous System | Last Active: Apr 19, 2023 | Replies (108)

Comment receiving replies
@lisalucier

Hi, @beth11 - like @hopeful33250, I really appreciate the update, especially about how the iron infusion has gone.

The times where I've had insomnia like you mentioned have been rough, and it's hard to feel good the next day.

I know that @aarniek has talked about spasticity, and may have some thoughts for you on management in terms of mobility and daily living. @jenniferhunter @jakedduck1 @beverlymarks @tdonoho also may have some thoughts.

Have you found anything that makes the constant muscle contracture in your feet and full body muscle spasms any better or worse? For example, are your symptoms better when you get better sleep or worse when you eat certain foods?

Jump to this post


Replies to "Hi, @beth11 - like @hopeful33250, I really appreciate the update, especially about how the iron infusion..."

I am so sorry for all your troubles hope you get to feeling better soon

The spasticity seem to be progressively worsening. I'm having disrupted sleep because my symptoms wake me. Certainly lack of sleep doesn't help my mood. Nothing seems to help the spasms although baclofen takes the edge off.