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← Return to undiagnosed movement disorder
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Hi everyone, currently unable to sleep well so I thought I'd post an update. I have finished my iron infusion and unfortunately have not noticed any difference in my muscle symptoms and general fatigue. I have an appointment this Friday with a hematologist. I have an upcoming appointment at Cleveland with a neuromuscular specialist. We have much to discuss as my symptoms have become much more severe. I'm experiencing constant muscle contracture in my feet, and full body muscle spasms that prevent me from standing/ walking. Muscle weakness and fatigue from the spasticity is worse. Does anyone have symptoms of spasticity? How do you manage in terms of mobility and daily living?
Replies to "Hi everyone, currently unable to sleep well so I thought I'd post an update. I have..."
Hi, @beth11 - like @hopeful33250, I really appreciate the update, especially about how the iron infusion has gone.
The times where I've had insomnia like you mentioned have been rough, and it's hard to feel good the next day.
I know that @aarniek has talked about spasticity, and may have some thoughts for you on management in terms of mobility and daily living. @jenniferhunter @jakedduck1 @beverlymarks @tdonoho also may have some thoughts.
Have you found anything that makes the constant muscle contracture in your feet and full body muscle spasms any better or worse? For example, are your symptoms better when you get better sleep or worse when you eat certain foods?
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Hello @beth11,
I appreciate hearing from you and providing an update. I am sorry to hear that you have yet to find an answer or any relief from your symptoms. I hope that your appointment on Friday is helpful.
Will you post an update after that appointment?