← Return to undiagnosed movement disorder
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Brain & Nervous System | Last Active: Apr 19, 2023 | Replies (108)
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Replies to "Hi Lisa thanks! I am doing okay mobility wise, except that I am not driving. My..."
Beth,I have no help on my own. My son lives in Calif and wants me to move there. I dont want to burden him.But I will seriously consider it. I have fallen several times.I use a walker to get around.If there is anything I can recommend please feel free.
Hi Beth, I'm sorry you are afflicted with a horrible ailment. The midsection spasms are familiar to me. My movement disorder specialist suspects I have abdominal dystonia. The spasms can last for hours. If I am standing up, the muscles tighten, pulling my upper body forward, crushing the ribs and I can't get my breath. It feels like a boa constrictor is squeezing me. I will begin a new med this week. Austedo is the name of it. If that doesn't relieve the spasms,Botox is the Plan B.You are the first person I've "met" who has this. Do my descriptions sound familiar to you? I'm a 73 yr old lady who also has PD. I live in South Carolina.